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Pacific Northwest Gardening: MY Charlize and her opportunity to live a wonderful life!

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Soferdig
Kalispell, MT
(Zone 4b)

December 1, 2010
8:19 PM

Post #8240251

This is the story for my GD Charlize who is having the battle of cancer. She is my blessing of such a strong 2 1/2 year old doing her battle with cancer. She is at this time starting Chemo and Radiation for a Clear Cell Sarcoma. I will use this site for all of the following story of her blessing and battle through this challenge.

RickCorey_WA

RickCorey_WA
Everett, WA
(Zone 8a)

December 1, 2010
9:58 PM

Post #8240306

I didn't realize she was that young - for some reason I pictured her as 5-7 years old.

If you're typical of your family, they must be tough stock, but that doesn't make getting though it easier - just possible.

Best wishes and prayers for all three generations to come through it strengthened!

Corey
mauryhillfarm
Vashon, WA
(Zone 8b)

December 1, 2010
10:01 PM

Post #8240307

My heart goes out to you and your sweet grandbaby as she enters the ring. I am holding you both in the light tonight and for the coming year.
(This is a Quaker expression meaning I am praying for you, that the light of the spirit surround you with love and support)

This message was edited Dec 1, 2010 11:02 PM
Soferdig
Kalispell, MT
(Zone 4b)

December 1, 2010
10:14 PM

Post #8240315

Tonight I called to talk to her and she was vomiting. Her chemo started today. The beginning of her strengthening to survive.
GardenSox
Sacramento, CA
(Zone 9a)

December 1, 2010
10:32 PM

Post #8240322

Sofer, I'm the proud father of a beautiful 2 1/2 year old girl and I've been following your story with great sadness and I empathize with you. I am trying to put myself into your situation and it just breaks my heart. I will keep praying for Charlize, her parents, her grandparents, and her doctors.
Gwendalou
Langley, WA
(Zone 7b)

December 2, 2010
6:40 AM

Post #8240573

Steve, I'm so sorry for Charlize and all her family. I will be praying for her daily. Waaaaaay too young to be going through this. My heart goes out to this little girl and her parents.
bonehead
Cedarhome, WA
(Zone 8b)

December 2, 2010
7:36 AM

Post #8240620

Hope is the thing with feathers that perches in the soul and sings the tune without words and never stops at all.

~Emily Dickinson
Soferdig
Kalispell, MT
(Zone 4b)

December 2, 2010
8:34 AM

Post #8240702

Begining Chemo yesterday Charlize was being her self with a occasional vomiting during the night. She was unable to talk to me when I called because she is quite tired. My daughter Leia has begun her planning for the hospital she will visit for the arrival of my new grandson. The name is being hidden from all of us so I have named him "Roldolfo" just to make them laugh. While typing this I just thought I haven't talked to him at all in her belly like I did to Charlize. That makes me sad.
springcolor
Lake Stevens, WA

December 2, 2010
8:58 AM

Post #8240726

Steve
Thank you for this thread. I have your Charlize in my thoughts all the time. I know this treatment will be hard but I pray she can tolerate the procedures. Then go on to a wonderful life.
Willowwind2
Union, WA
(Zone 8b)

December 2, 2010
10:37 AM

Post #8240850

And congratulations on the new grandson. My family has been near this same situation twice and my heart and hopes with be with you and yours.
Soferdig
Kalispell, MT
(Zone 4b)

December 3, 2010
5:15 PM

Post #8242898

Well my Daughter reported all of the many details of the process of chemo-radiation and all of the scheduling of this. This of course is during my Daughter C-Sec on Monday being scheduled with all of the moments of bravery my daughter has sustained. I am proud but also concerned for her with all that she bears. The joy of my grandson on Monday will be an uplifting moment of Joy! Hope all is well there. They didn't comment to me last night with how Charlize is doing because the chemo has made her quite ill and they know I cry with worry. But right now all is what we can expect.
LynnPhillips
Buckley, WA
(Zone 7b)

December 3, 2010
5:23 PM

Post #8242906

That is good news. I am serious, what help will she need with a new baby and an ill daughter? I am here for you all.
AnalogDog
Mountlake Terrace, WA
(Zone 8a)

December 3, 2010
9:12 PM

Post #8243153

I understand all your pain and can empathize. My best wishes to Charlize and the battle of her life. I truly wish her the best.

I have a good friend and they had twins that were preemies and are finally out of the ICU after a year and a half, they live in an oxygen tent at night only. It is quite a relief that they are doing so much better.
Soferdig
Kalispell, MT
(Zone 4b)

December 3, 2010
9:56 PM

Post #8243209

AD you too have had a battle that continues. I will pray for your daughter and her little ones. My Daughter is excited for the arrival as all of us are. She is a strong person with her faith. We truely believe in what ever happens it will be glorious. I am anxious to talk to her tomorrow before the surgery. The fear is captivating but not accepted by any of us for the outcome.
Gwendalou
Langley, WA
(Zone 7b)

December 4, 2010
3:09 AM

Post #8243402

I've had 3 c-sections - your daughter will do great. When the c-section is planned, it's so much easier because your body hasn't had hours of labor first. Tell her to make sure she asks for painkillers before they make her get out of bed. Like at least 30 minutes. It makes getting out of bed so much easier! And once you're up, moving around is not bad. It's just the getting up and the getting back into bed, the first couple days.

Where does your daughter live?
Portland1
(Judi)Portland, OR

December 4, 2010
8:27 AM

Post #8243757

Sofer, so much going on in your life! Don't forget to care for yourself and your sweetie, so that the two of you can be there for all those that lean on you when things are difficult. Welcome to the new arrival! Hope Charlize is doing ok.
Soferdig
Kalispell, MT
(Zone 4b)

December 4, 2010
1:50 PM

Post #8244084

Charlize is doing good. They got to take her home today for a good homecoming. She has been spoiled so much at Mary Bridge she didn't want to leave? I think she was tired. Now mom and soon only dad are her caretakers.
I and fighting a virus while working up here in AK but doing well with HOPE: "the feather that lands on the soul singing a song without words that never ends."
Portland1
(Judi)Portland, OR

December 4, 2010
6:36 PM

Post #8244486

Rest rest rest Sofer! Stay warm, take a hot bath, rest - you know the drill! Get well very soon.
Soferdig
Kalispell, MT
(Zone 4b)

December 5, 2010
2:08 PM

Post #8245597

My Charlize is dropping into the post chemo buzz. She is withdrawn losing her color and darkening her beautiful blue eyes. Being home my kids are overwhelmed with care with her, housekeeping, answering phone calls, groceries, preparing for Leia my daughter to have Csec tomorrow and all while she battles contractions with tomorrows blessing! I so want to help bit I am the only help for all the animals on remote AK needing the same assistance. It is a difficult decision to be here. Pray for a needed sense of peace for their home.

Kylaluaz

Kylaluaz
Richmond, VA
(Zone 7a)

December 5, 2010
2:15 PM

Post #8245608

Soferdig I hope Leia and the family have some help, this is bound to be overwhelming one way or another. Sending my best heartfelt prayers for peaceful joyous outcomes for you all... and I agree, please take care of yourself as well, that's kind of easy to forget in this sort of situation but so important.

Soferdig
Kalispell, MT
(Zone 4b)

December 5, 2010
3:16 PM

Post #8245711

Support is all around but the phone groceries etc are a personal decision and my Leia is a do it herself type of person. Maybe she will learn delegation. LOL

Kylaluaz

Kylaluaz
Richmond, VA
(Zone 7a)

December 5, 2010
5:21 PM

Post #8245897

Gotcha. Glad the support is available as desired tho.
Horticulturist
Port Angeles, WA

December 12, 2010
8:33 PM

Post #8256954

I've known of several children who have had cancer. It's enormously more difficult on the parents and those who love her. She knows no different...this is life as she knows it and she isn't old enough to realize that it isn't fair.
Love her, cherish her, put your faith in God ( or what power gives you strength ) and remember, there has never been a better time in the history of Man to have cancer. Science and medicine has never been better and the odds are strongly on her side.
Wishing you a blessed Christmas and a Truely Wonderful New Year!
Soferdig
Kalispell, MT
(Zone 4b)

December 13, 2010
10:47 PM

Post #8259023

I agree with the utmost trust in my Christ. My grand baby has not eaten or slept until last night. But when rested she is our angel. My daughter is the problem now with a daughter and new baby who wants her to do it all. Please pray for her to just rest and let the rest of her family take over. Her Csec stitches are painfull and she is exhausted. I so want to be there and help but there is so many who need me here in AK. My DD told me to work so I am. Guilt! But God is blessing me with all the pets up here. Soon to be holding my GD and my new GS!
Soferdig
Kalispell, MT
(Zone 4b)

December 15, 2010
9:10 PM

Post #8262757

Charlize went to her chemo followup and her white cells are storming back. I get to take her to the zoo lights in Seattle. Yahoo!
GardenSox
Sacramento, CA
(Zone 9a)

December 16, 2010
8:31 AM

Post #8263364

That's great news!
Willowwind2
Union, WA
(Zone 8b)

December 16, 2010
4:15 PM

Post #8264038

So happy for you all. Have a great holiday.
Portland1
(Judi)Portland, OR

December 16, 2010
5:38 PM

Post #8264111

Oh what good news! Nice Christmas present!
PNWMountainGirl
(Sharon)SouthPrairie, WA
(Zone 7a)

December 17, 2010
3:55 PM

Post #8265466

Steve, you and your family are in my thoughts and also Julie's. We are cheering for you with each and every step you take, and we know how many there are!
mauryhillfarm
Vashon, WA
(Zone 8b)

December 17, 2010
5:22 PM

Post #8265573

Have a fabulous time at Zoolights. I am so glad the chemotherapy is doing what it needs to do and her strong spirit is bringing her through.
Soferdig
Kalispell, MT
(Zone 4b)

December 17, 2010
9:31 PM

Post #8265914

You all are so wonderful to care and love me. Merry Christmas to all at our family at DG. Off to my new baby GS and happy GD tomorrow.
bonehead
Cedarhome, WA
(Zone 8b)

December 23, 2010
10:34 PM

Post #8274634

Godspeed to one and all.
Soferdig
Kalispell, MT
(Zone 4b)

December 30, 2010
9:12 PM

Post #8284408

She got her third chemo and needed transfusion today. Still fighting with little complaint. Get to see her tomorrow!
Gwendalou
Langley, WA
(Zone 7b)

December 30, 2010
9:51 PM

Post #8284434

Enjoy your visit with her and also the new little one! Hopefully it'll be a good day for all concerned. I bet having you around cheers them all up immensely.
Soferdig
Kalispell, MT
(Zone 4b)

January 2, 2011
11:49 PM

Post #8289461

I had a wonderful time with my Charlize. She had energy and couldn't get enough time with "PA". She is my friend.

Thumbnail by Soferdig
Click the image for an enlarged view.

Kylaluaz

Kylaluaz
Richmond, VA
(Zone 7a)

January 3, 2011
12:07 AM

Post #8289464

Oh, what a beauty she is, Steve. Watch out for that magic wand, though, she may just ring some changes on everyone. (As if she hasn't already.) ;)
Jan23
Salem Cnty, NJ
(Zone 7b)

January 3, 2011
5:39 AM

Post #8289616

That is quite the wand! What a beautiful princess!
Portland1
(Judi)Portland, OR

January 3, 2011
8:42 AM

Post #8290004

So sweet to see her at play - love the outfit!
springcolor
Lake Stevens, WA

January 3, 2011
8:49 AM

Post #8290024

What a sweetie! Glad she is feeling so well after the treatment.
Soferdig
Kalispell, MT
(Zone 4b)

January 3, 2011
11:27 AM

Post #8290233

She uses the wand to "turn off" grandpa's singing. I always sing to her to cheer her up and she always gets a big smile and says: "Grandpa stop singing" I of course don't until she runs and get the magic wand. LOL
I built her a space ship out of cardboard and left over stuff around the house from Christmas gifts. She at first didn't know how to use imagination and we got her going by looking into the telescope and viewing stars then I put on wrapping on my head and played space man monster for her to shoot paper at. She got it pretty fast now they can't throw away the box. oops!

Thumbnail by Soferdig
Click the image for an enlarged view.

Kylaluaz

Kylaluaz
Richmond, VA
(Zone 7a)

January 3, 2011
11:41 AM

Post #8290250

Oh, no, you must never ever throw away that box.

That is a fabulous story and picture, God bless all of you. She's a Queen already.

Steve, your singing, though, it must be something pretty awful bad, I reckon.

Kylaluaz

Kylaluaz
Richmond, VA
(Zone 7a)

January 3, 2011
11:44 AM

Post #8290254

When I was about her age, my Grandfather, who was a Baptist preacher, y'all, used to be the only one who could get me to shut up and go to sleep at night, sometimes.

He did this by singing to me the folk song Rye Whiskey

rye whiskey, rye whiskey, rye whiskey I cry!

If I don't get rye whiskey I surely will die!

If the sea was rye wiskey and I was a duck

I'd swim to the bottom and drink it all up!

etc.

He was some kinda preacherman, was my Grandfather.
springcolor
Lake Stevens, WA

January 3, 2011
2:58 PM

Post #8290606

The box!! Best toy of all. In the summer when my boys were small I would go in to Judd and Black and get a couple of refigerator boxs. They made the best forts. The boys would cut holes, paint and pack stuff into them. So fun.
So happy you are having fun with her. Imagination what fun!!
LynnPhillips
Buckley, WA
(Zone 7b)

January 3, 2011
4:39 PM

Post #8290809

What a happy moment for you to share with us, Steve.
Soferdig
Kalispell, MT
(Zone 4b)

January 3, 2011
11:52 PM

Post #8291404

I have a good voice she just loves to tell me what to do, cause I don't jump at her first request. She has gotten a little spoiled by everyone around her. This illness is a balance of keeping her the special one at the same time learning lifes rules and all of the social lessons we adults inflict on our young ones.
This one was when Chemo and radiation were just finished. She loves her brother.

Thumbnail by Soferdig
Click the image for an enlarged view.

ladybuggfan
Carnation, WA
(Zone 7b)

January 4, 2011
9:40 AM

Post #8291945

Beautiful picture of both kids!
bonehead
Cedarhome, WA
(Zone 8b)

January 4, 2011
7:52 PM

Post #8292905

Kyla, perfect song from a grandfather, preacher or not. What a wonderful memory.

Kylaluaz

Kylaluaz
Richmond, VA
(Zone 7a)

January 4, 2011
10:04 PM

Post #8293019

thank you. it is not really my memory, I was too young to be smart enough to have one, but it is a family memory. And a treasured one.

Let's hope Charlize gets a smart memory much earlier than I did and so will recall this amazing visit from her Pa. :)
Soferdig
Kalispell, MT
(Zone 4b)

January 5, 2011
10:50 PM

Post #8294777

You are too kind Kyla. Thank you. I know I will remember it. My brave princess ready to shut up PA. LOL

Thumbnail by Soferdig
Click the image for an enlarged view.

susybell
Vancouver, WA
(Zone 8a)

January 7, 2011
2:26 PM

Post #8297748

Hi Sofer, been away from here for months, so this is the first opportunity I've had to say I'm very sorry to hear what your GD is going through, but I'm sending good thoughts and strength her way.
Soferdig
Kalispell, MT
(Zone 4b)

January 7, 2011
11:55 PM

Post #8298419

Hi suz. I just saw you on other forum. It is so good to hear from you again!
susybell
Vancouver, WA
(Zone 8a)

January 8, 2011
6:11 PM

Post #8299692

Hi Steve, thanks, I'm afraid I'll probably continue being a sporadic visitor now, but I'll try to swing by a little more often. :)
mauryhillfarm
Vashon, WA
(Zone 8b)

January 8, 2011
7:57 PM

Post #8299858

I love that picture of Charlize holding her little brother. Just precious, both of them!
Pixydish
Lakewood, WA
(Zone 8a)

January 10, 2011
9:40 PM

Post #8303799

Steve, it's so uplifting to know that Charlize is on the rebound, and that she has a beautiful new brother! I pray the illness will soon be a thing of the past. I've been thinking of you and of Charlize and her parents.
Pixydish
Lakewood, WA
(Zone 8a)

January 10, 2011
9:40 PM

Post #8303800

Steve, it's so uplifting to know that Charlize is on the rebound, and that she has a beautiful new brother! I pray the illness will soon be a thing of the past. I've been thinking of you and of Charlize and her parents.
Soferdig
Kalispell, MT
(Zone 4b)

January 12, 2011
8:49 PM

Post #8307773

I am spending my week on my sailboat in the cold north winds and with my electric blanket it is wonderfully! Kind of like beinghome next to the fire with my GD. Thank you all for such kindness and prayers
Jan23
Salem Cnty, NJ
(Zone 7b)

January 13, 2011
5:42 AM

Post #8308042

So thankful for an electric blanket!
Willowwind2
Union, WA
(Zone 8b)

January 13, 2011
10:58 AM

Post #8308672

We had a lovely six inches of snow yesterday and now it is all gone.
Soferdig
Kalispell, MT
(Zone 4b)

January 19, 2011
1:44 PM

Post #8319269

Charlize has caught the flu bug from her dad and has stopped eating. The constant vomiting and all has taken 10% of her weight and looks like she will need hospitalization. The fight continues with everyone of her caretakers sick. Looks like a trip to Seattle when I get home. No time to curl up by the fire and hug my dogs. Still batteling here in AK.
bonehead
Cedarhome, WA
(Zone 8b)

January 19, 2011
2:24 PM

Post #8319347

Sending extra juju and karma to little Charlize.
Amber_lee
Seminole, OK
(Zone 7a)

January 19, 2011
2:37 PM

Post #8319374

Sending prayers your way.
Willowwind2
Union, WA
(Zone 8b)

January 19, 2011
5:16 PM

Post #8319649

Continuing good thoughts and big hugs for you all.
Portland1
(Judi)Portland, OR

January 19, 2011
5:57 PM

Post #8319698

Poor little thing! Hope she feels better quickly, and that goes for her caretakers as well. Hugs and good thoughts.
Rarejem
(Julie)South Prairie, WA
(Zone 7a)

January 20, 2011
7:03 AM

Post #8320319

Still thinking of you and yours... so hard for the poor little one and for all of those who love her. More hugs and good thoughts coming from us!
LynnPhillips
Buckley, WA
(Zone 7b)

January 20, 2011
10:47 AM

Post #8320648

We're thinking about your family every day.

Kylaluaz

Kylaluaz
Richmond, VA
(Zone 7a)

January 20, 2011
11:29 AM

Post #8320721

Adding my voice and prayers and well wishes, Steve.
Soferdig
Kalispell, MT
(Zone 4b)

January 20, 2011
8:16 PM

Post #8321598

Today my beauty is doing real poorly. She got the flu vris and with no immune system is failing the battle. I am headed to her on sat to help her mom and dad. Please pray for a miracle! Thank all of you for your prayers!

This message was edited Jan 20, 2011 9:52 PM

Kylaluaz

Kylaluaz
Richmond, VA
(Zone 7a)

January 20, 2011
8:40 PM

Post #8321630

Thanks for the information. she's sitting right here in my heart, Steve.
springcolor
Lake Stevens, WA

January 20, 2011
9:36 PM

Post #8321664

My heart is breaking to here of you sweet baby being so sick. Have her in my prayers and thoughts.
susybell
Vancouver, WA
(Zone 8a)

January 20, 2011
10:44 PM

Post #8321693

oh no, poor girl! Sending good thoughts!
Horticulturist
Port Angeles, WA

January 21, 2011
4:36 AM

Post #8321821

Prayers for her healthy recovery and for strength to those who love her. So much suffering for such a young baby.
Jan23
Salem Cnty, NJ
(Zone 7b)

January 21, 2011
6:52 AM

Post #8322087

Praying continually.
PNWMountainGirl
(Sharon)SouthPrairie, WA
(Zone 7a)

January 21, 2011
8:47 AM

Post #8322300

Steve, you all really really deserve that miracle! I sincerely hope it happens for you.
Pixydish
Lakewood, WA
(Zone 8a)

January 21, 2011
7:51 PM

Post #8323435

My thoughts and prayers added to those above, Steve. She's a strong girl.
Soferdig
Kalispell, MT
(Zone 4b)

January 21, 2011
10:35 PM

Post #8323570

I will be by her side in 4 days. She is anxious to see me. I am blessed to be loved by her!
mauryhillfarm
Vashon, WA
(Zone 8b)

January 22, 2011
8:34 AM

Post #8324104

I'm so sorry your little sweetie is suffering. Your love is with her no matter where you are, but Godspeed to you in your travels to be with her and her family once again.
bonehead
Cedarhome, WA
(Zone 8b)

January 28, 2011
11:13 AM

Post #8335263

Sofer, my thoughts have been and remain with your little grandbaby and her extended family. I am also following her blog updates, heart-wrenching as they can be. Such a brave little trooper she is. Your family's strong spirituality has been inspiring as well. Take care and stay strong.

RickCorey_WA

RickCorey_WA
Everett, WA
(Zone 8a)

January 28, 2011
3:30 PM

Post #8335702

Adding her and all her family to my prayers, too.
ladybuggfan
Carnation, WA
(Zone 7b)

January 28, 2011
6:29 PM

Post #8335990

Adding her, her family and you to my prayer list. The power of positive thoughts!
Soferdig
Kalispell, MT
(Zone 4b)

February 1, 2011
4:51 PM

Post #8343847

I just finished a week at the hospital and at their home helping with all of the details of the battle. I am exhausted! My poor daughter and her fight to keep her daughter battling. She is remarkable with her faith and her patience. I took over when ever I could and had a wonderful time with my GS and bonded with him tremendously. My GD and I had many times to love each other. She is so angry and does not know how to release her frustrations of the pain and torment of the procedures. While I had her I let her get angry and thump on me to release some of the anxieties that are building up. She started smiling with the beating that she gave me. LOL. I am so concerned with my Leia (DD) as she fights like a banshee to keep her daughter going. It is a blessing to have the time to talk and deal with the big issues with a common Spirit that we both share. I thank God for all that he has given us and pray that the battle diminishes with Charlize for a while. She has stopped vomiting and now has a NJ tube. (nasal-jejunum) to by pass the tormented stomach. She has lost 1/3 of her weight with the battle and with this tube can gain and grow. Thank the people who love her so much at the hospital. We as soooooooo blessed.
BeaHive
Dallas, OR
(Zone 8a)

February 1, 2011
5:06 PM

Post #8343883

Everyone still in my prayers.
Gwendalou
Langley, WA
(Zone 7b)

February 1, 2011
5:18 PM

Post #8343907

I saw the photo they posted of you on their site - so cute of you both. Oh, and the photo of Caedmon smiling - how precious.

I can't even imagine what that little girl is going through. I'm sure having a fresh person there is a huge huge huge relief for everyone involved.

Smiling at the image of Charlize beating up on Steve...

Kylaluaz

Kylaluaz
Richmond, VA
(Zone 7a)

February 1, 2011
7:34 PM

Post #8344129

I dreamed about her. I dreamed that she was just fine. Hope it comes true for real. She was about three years old and had blond curls and a cute checkered shirt on. I was telling people in the dream, hey, she's just fine, she's all right.

Soferdig
Kalispell, MT
(Zone 4b)

February 1, 2011
8:43 PM

Post #8344217

I too believe that but the medical protocol is abusive. I hope for her health and believe that not myself but God is in control. I just am wondering His plan. But in ALL THINGS give thanks. I trust in my creator to bring His plan and what ever that is I accept it. Right now tonight I pray for a positive moment in my families life. Thank you Lord!

Thumbnail by Soferdig
Click the image for an enlarged view.

springcolor
Lake Stevens, WA

February 1, 2011
9:55 PM

Post #8344314

Thanks for the picture. Cute Wishing your family the best.
Portland1
(Judi)Portland, OR

February 2, 2011
5:37 AM

Post #8344549

What an adorable photo - thinking good thoughts for both of those precious children, and their parents. They must be exhausted. Thank goodness Grandpa Steve is there at times to give some relief!
Rarejem
(Julie)South Prairie, WA
(Zone 7a)

February 2, 2011
12:33 PM

Post #8345365

Steve, the picture is priceless! My heart still aches for you and your family, and you are all constantly in our thoughts...
Pixydish
Lakewood, WA
(Zone 8a)

February 6, 2011
9:17 AM

Post #8357161

Kylaluaz, that's a great image of Charlize in the dream. I will hold that image of her, happy, healthy, in the future.
Yes, Steve, the medical protocol does feel abusive,, doesn't it? And she is in as good a hospital as you can get for little kids. She has come this far and every day is another one closer to healing. She and her parents are very lucky to have you.
mauryhillfarm
Vashon, WA
(Zone 8b)

February 13, 2011
7:11 PM

Post #8370644

Steve, I have been keeping your dear granddaughter and her family in my prayers. I sincerely hope things turn for the better and become less painful for her soon.
Laurie1
Burwash Weald
United Kingdom
(Zone 9b)

February 14, 2011
9:36 AM

Post #8371527

Steve, apologies for not being around much - just stopping by during a cancellation and caught up on Charlize and your family. Warmest thoughts for this new year. I hope by time we get to the end of it you have a two healthy grand-kids.

Sent on Valentines day with heartfelt sincerity.

Laurie
Soferdig
Kalispell, MT
(Zone 4b)

February 21, 2011
9:11 AM

Post #8384305

Her battle is still mostly attacking her stomach with chemo paralysis so no feeding is working as of today. She started on Total Parenteral Nutrition (TPN) just to keep her alive and to fight the GI infection she is battling. But today I get to leave AK and get to her bed-side. She is my heart and keeps it full as I see her tease the Doctors as they do their work. The joy(?) of young children with cancer (if there is any) is the fact that they don't know that life is any different, than battling each day for your life.
Portland1
(Judi)Portland, OR

February 21, 2011
9:17 AM

Post #8384315

Give her a hug for all of us. Such a brave little sweetie.
mauryhillfarm
Vashon, WA
(Zone 8b)

February 21, 2011
12:13 PM

Post #8384647

She needs you there to help her hold on. How long can you stay? I hope a good long while and no other emergencies calling you. She still has her fighting spirit if she is teasing the doctors. I bet she has endeared everyone around her.
Jan23
Salem Cnty, NJ
(Zone 7b)

February 21, 2011
1:31 PM

Post #8384785

Yes, please give her a big hug from NJ also. I am positive she has enamored everyone she meets. So glad you will be with her.
Willowwind2
Union, WA
(Zone 8b)

February 21, 2011
4:15 PM

Post #8385094

Hugs to you Sofer.
springcolor
Lake Stevens, WA

February 21, 2011
6:36 PM

Post #8385399

Nice to hear she is having a little fun with the DRs. I think of her often and pray that she is soon restored to healthy life.
Also, so happy you were pulled out of the water. Be safe and have a good visit with your family
Pixydish
Lakewood, WA
(Zone 8a)

February 22, 2011
3:25 PM

Post #8386999

Steve, I'm sending prayers Charlize's way, and yours as well, my friend.
Soferdig
Kalispell, MT
(Zone 4b)

February 23, 2011
8:10 PM

Post #8389442

She is still dealing with the immune suppression and the viral attack to the gut was followed with a bad bacterial infection. She still is not able to keep food down to digest it but I did get her to eat the protein liquid in the best cereal in the world, "Cocoa Pebbles". LOL She kept it down long enough to get the nutrition out of it, about 7 hours. So each morning that I was there it was time for her chocholate fix. She in constantly getting TPN (IV food) but that is hard on her blood sugar, and liver. So we hope????? we can get off it sometime soon. She is getting very combatant with simple proceedures like finger pricks for glucose levels even when I do mine in front of her every day. I am now home and trying to fix all the broken stuff since I left. Our very expensive new furnace is broken and my electric floor heater is needing a new thermostat so I am off and running.
Pixydish
Lakewood, WA
(Zone 8a)

February 24, 2011
10:40 AM

Post #8390312

She is hanging in there! I never thought I would be glad for cocoa pebbles. You have one busy life, Steve.
Soferdig
Kalispell, MT
(Zone 4b)

February 24, 2011
10:02 PM

Post #8391377

Yep and I am taking care of my 88 year old mother who is easy but dimentia is taking its toll. My DW is an angel to cover for me when I am gone.

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bonehead
Cedarhome, WA
(Zone 8b)

February 25, 2011
7:09 AM

Post #8391793

What a splendid lady. Treasure her lucid moments and join in her alternate world as best you can.
Willowwind2
Union, WA
(Zone 8b)

February 25, 2011
11:35 AM

Post #8392279

Your mom is so beautiful and looks so young. Hugs to her.
Soferdig
Kalispell, MT
(Zone 4b)

February 25, 2011
6:17 PM

Post #8393004

It is not my mom it is my beautiful wife. This is my mom last christmas in Hawaii. Not bad for 87 yrs.

This message was edited Feb 25, 2011 7:18 PM

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bonehead
Cedarhome, WA
(Zone 8b)

February 25, 2011
6:19 PM

Post #8393014

Two lovely women. Lucky you.
Willowwind2
Union, WA
(Zone 8b)

February 25, 2011
8:33 PM

Post #8393193

Sorry. Well both of the women in your life are beautiful and young looking.
Soferdig
Kalispell, MT
(Zone 4b)

February 28, 2011
9:17 PM

Post #8399160

She got HOME yesterday and is hanging in there. No food staying down but the food tube is maintaining her diminished wt. Ya Hoo!
bonehead
Cedarhome, WA
(Zone 8b)

March 1, 2011
7:13 AM

Post #8399772

Sofer, how much longer does Charlize have on her chemo? Hopefully when they are done bombarding her poor little body with toxins, her digestive system will have a better change to recover. What a difficult fence to straddle - kill the cancer but nurture the body. Positive thoughts continuing to pour down south to her and the family.
Soferdig
Kalispell, MT
(Zone 4b)

March 1, 2011
8:00 AM

Post #8399912

She is in a long chemo battle. Not until July does she end weekly treatments. The dammage is suposed to be temporary but... She is one of the few that have the paralysis of gut due to the chemo. They don't even want to wait 2 days to let her recover. Tough cancer. Though no evidence of regrowth on last weeks CT.
Charlize is at home and when the tubes and IVs are detached she now does the "freedom" dance and laughs and smiles as she bounces on the bed. It is almost a tear jerker to watch such strength in her fighting for her life with moments of PURE JOY!
bonehead
Cedarhome, WA
(Zone 8b)

March 1, 2011
8:13 AM

Post #8399935

She is indeed an inspiration.
Jan23
Salem Cnty, NJ
(Zone 7b)

March 1, 2011
3:40 PM

Post #8400811

Inspiration for sure!!! {{{{{HUGS}}}}} Charlize
Azorina
(Linda)Gig Harbor, WA
(Zone 8a)

March 1, 2011
9:12 PM

Post #8401598

Steve, I have been following Charlize's struggles on Mary Bridge Hospital's Care pages...all your family is so amazing during such incredibly difficult times. You all have a lot more prayers in your court than you know and certainly all of mine!
Pixydish
Lakewood, WA
(Zone 8a)

March 2, 2011
10:45 AM

Post #8402386

How wonderful that she is home again!

beebonnet

beebonnet
Coos Bay, OR
(Zone 9a)

March 2, 2011
6:39 PM

Post #8403386

Yes, wonderful that she is home. Such a brave little girl. We all pray she feels better every day.
mauryhillfarm
Vashon, WA
(Zone 8b)

March 2, 2011
10:43 PM

Post #8403750

Hooray that she is home!!! That is surely a hopeful sign that she is doing better though there are yet more chemo treatments to endure. May you all have some moments of respite to enjoy the comforts of home before that begins again.
Soferdig
Kalispell, MT
(Zone 4b)

March 3, 2011
9:57 AM

Post #8404498

Hope is the gift that we all have with the Joy of our child. Thank you Spirit of Love!

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Jan23
Salem Cnty, NJ
(Zone 7b)

March 3, 2011
11:17 AM

Post #8404609

How precious that picture is!!! Definite joy on her face as she helps take care of baby brother.
BeaHive
Dallas, OR
(Zone 8a)

March 3, 2011
3:12 PM

Post #8404968

Beautiful picture of your grandchildren. Charlize is a very good big sister!
LynnPhillips
Buckley, WA
(Zone 7b)

March 4, 2011
6:55 PM

Post #8407356

That picture shows the spirit of His love. She is beaming with happiness despite her sufferings.
Soferdig
Kalispell, MT
(Zone 4b)

March 5, 2011
6:56 AM

Post #8407862

http://www.carepages.com/carepages/BeautifulGrace This is the home page for a daily up date on her battle. Lots of vomiting since chemo all day and night but she rests when she can. Her parents are very tired, and trying to handle it. I can only thank God for the power he put in my daughter and son-in-law.
Soferdig
Kalispell, MT
(Zone 4b)

March 22, 2011
7:29 AM

Post #8442736

I thought I would post the great news. Thank you God!
Charlize's Updates

We are at our halfway point and things continue to go well! We were admitted again on Sunday morning to prepare Charlize’s TPN delivery to be compressed to a 12 hour time frame, so she is able to receive it opposite of her Chemo throughout this week. This afternoon she was unhooked from her TPN and given a 45 minute brake until she was put on her fluids and prepped for Chemo. We had fun walking around visiting with everyone and getting movies and juice. The Doctors and Nurses have had a great time with her this stay already, as they have had the opportunity to see her as her true self. The past few months she has been so sick, that they have seen a totally different little girl then what we know her to be. She has given them small glimpses here and there, but now that she is feeling better she is cutting loose; giving everybody a good show yesterday as she ran out of her room and danced naked in the doorway.
On Saturday she had the best day she has had in months! She had a blast at the Seattle Science Center in Seattle with her cousins. Charlize did great with keeping her hands clean and listening to mommy. Leia told her prior to going in that she had to ask before touching anything and then had to sanitize after she touched it. Charlize asked every time before touching something and never complained about sanitizing afterward. She was so good and had a great time. She rounded out the night at her cousin’s house playing chase and wrestling.
Sunday morning came too quickly, but you cannot escape the inevitable. Even though she is feeling well, we never look forward to a five day stay. Charlize on the other hand was happy to see everyone. She kept asking to see different nurses, and was being silly with everyone. While she had her break from TPN last night and was unhooked from her tubes, she made several trips out to the nurses’ station making requests for ice chips and movies. Yesterday and today she has continued to eat better; we have had some high calorie juice boxes and a milk shake to help along the process as well.
Today we got her TPN compressed to a 12 hour delivery. She has tolerated the accelerated compression over the past two days, but her liver enzymes are still climbing. We are hoping we will see a drop in those levels by tomorrow, given that she will have two days with only 12 hours of delivery. This will give her liver a break from working around the clock, filtering and dispersing the nutrients continually has put some stress on it. Her least favorite part about the TPN is she gets her finger poked a couple times a day to test her blood sugar. She has maintained normal blood sugar levels through this past week, and she has cut her cry time in half after the finger poke – we are making progress.
This is day one of a pretty heavy cycle of Chemo. She has not vomited yet, and we are praying hard that she will be able to get through this week with as little as possible. Please pray that the chemo will do its full work at killing of the cancer, but that she will not experience the severe side effects that she has experienced in the past. We are really hopeful that we will be able to get through this week without losing the ground we have gained over this past week.
We are halfway there, still pressing on and pressing in!

wannadanc
Olympia, WA

March 22, 2011
7:54 AM

Post #8442785

Love and prayers for this brave little trouper and her family!!! Thanks for the update, Sofer.
GardenSox
Sacramento, CA
(Zone 9a)

March 22, 2011
8:31 AM

Post #8442848

I'm praying for your little angel. Her courage and optimism have been an inspiration to me. I wish I could give her a great big hug.
Gwendalou
Langley, WA
(Zone 7b)

March 22, 2011
8:50 AM

Post #8442878

I'm so happy she seems to be past the stomach issues. Or at least on the downhill side of that battle. Also that she's on the downhill side of the chemo battle. What an ordeal for such a tiny girl to go through. My heart breaks for her and her family. Daily prayers.
Jan23
Salem Cnty, NJ
(Zone 7b)

March 22, 2011
9:41 AM

Post #8442957

Yes, daily prayers here, too. My little SS class made cards again this week. I must get them in the mail. She is definitely a trooper.
Soferdig
Kalispell, MT
(Zone 4b)

March 22, 2011
1:12 PM

Post #8443297

Oh Jan thank you for the ones we recieved about 2 months ago. Your name was on the return address and I couldn't remember your DG name. THANK YOU TO YOUR CHILDREN!
Jan23
Salem Cnty, NJ
(Zone 7b)

March 22, 2011
4:01 PM

Post #8443591

You are quite welcome. My kids are quite something. Small in #s, but mighty in spirit. They love to sing and play instruments while marching. Our pianist who is 83 just loves coming to play for them. She is awesome.
I've also made a blanket for Charlize and for a dolly.
Could you dmail her address again. I promise - this time I'll put it where I'll remember it. or maybe not sigh
Soferdig
Kalispell, MT
(Zone 4b)

April 28, 2011
8:25 PM

Post #8527559

The news is getting better after a long time with me being angry with the male must fix or fight. LOL

Posted Apr 26, 2011 11:58am
We had a great weekend and are off to a good start this week! On Saturday Charlize’s counts were still very low, but she wanted so badly to get out, so she got all dressed up in her Easter dress and went to church for a special family event we had before our 3pm service. Leia brought the kids down late, so they were able to go in and sit down after everyone had already done so. Charlize had a great time watching Mark Thompson, a ventriloquist and comedian. She was engaged through the entire time and did not want to leave, but they had to leave out the side door ahead of everyone else to avoid the crowds. She wanted to say hi to everyone and see her friends, but she was not well enough to be around the crowds. Before they headed home, she did get to go out back and play in the field with some of her friends, which made the departure a bit easier.

On Sunday she had not vomited at all and was feeling good, so we went to have Easter dinner with our family. Everyone was healthy and did plenty of hand washing and sanitizing, and Charlize and Caedmon had a great time seeing all their family. It was nice to have a normal evening with our family and celebrate a holiday with them outside of the hospital. After spending every holiday thus far in the hospital or all day in the clinic, we were very happy to “normal” uninhibited celebration with everyone. We were able to bring all of her meds and TPN and Lipids with us, so we administered all of them and hooked her up away from home, to extend our night out as much as possible. As we were driving away, we said to Charlize, “That was pretty special, you got to see all of your favorite people tonight all in one place.” She responded “Yeah! I got to see my Family!” It brought tears to our eyes to hear the joy in her voice and to acknowledge her family as her favorite people; such a blessing for all of us.

Yesterday we woke up and de-accessed her at home again. That went very well, not even a single tear produced. We then made another trip to the community center for a swim. She had a great time and is getting quite brave in the water. She walks in on her own and does not want any help until she cannot touch anymore. She will push it until she is on her tippy toes and leaning out for me to catch her. She also plugged her nose and put her head under the water all on her own for the first time, without prompting.

Charlize also had her visit to the oncology clinic yesterday, but was not scheduled for chemo or any transfusions, so she made it a quick visit of only 2 hours. She got her routine checkup, re-accessed had labs drawn, turned in her stool sample and was out and on with the afternoon. Her counts all looked good and her ANC came back at 23,000. That number got her a week of freedom, and we are getting her back and healthy in time for chemo beginning this coming Saturday for our 5 day stay. We are looking forward to a good week with her feeling good and are hopeful that the vomiting and diarrhea will begin to clear up as well. Thank you for your love and prayers.

I have also uploaded some new photos from the past week – Enjoy!






This message was edited Apr 28, 2011 8:31 PM

This message was edited Apr 29, 2011 5:28 PM

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springcolor
Lake Stevens, WA

April 28, 2011
10:13 PM

Post #8527668

That is great news!! What a beautiful child!! How much longer? She is a fighter for sure.
Jan23
Salem Cnty, NJ
(Zone 7b)

April 29, 2011
6:25 AM

Post #8528040

I just love the largest dandelion in the middle. Beautiful!!!! great news, Steve.
Family is the bestest thing since sliced bread.
Willowwind2
Union, WA
(Zone 8b)

April 29, 2011
10:32 AM

Post #8528431

Very good news to hear Sofer. Fantastic!
bonehead
Cedarhome, WA
(Zone 8b)

April 29, 2011
11:15 AM

Post #8528498

Your granddaughter and family have been an inspiration. All my best thoughts and good karma.
Pixydish
Lakewood, WA
(Zone 8a)

April 29, 2011
10:53 PM

Post #8529567

What a blessed Easter celebration. I'm so glad she is doing better. I know it's a long road.


























+
Portland1
(Judi)Portland, OR

April 30, 2011
7:12 AM

Post #8530023

Sofer such happy news. Sending good thoughts your way.

" The news is getting better after a long time with me being angry with the male must fix or fight. LOL " It's not just the male wanting to fix things - mothers want to protect their children against all odds. So, it seems we're all in this together.
Soferdig
Kalispell, MT
(Zone 4b)

April 30, 2011
9:06 PM

Post #8531440

Thank You all! Now for the Sun to come out and the air to WARM!

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bonehead
Cedarhome, WA
(Zone 8b)

April 30, 2011
9:27 PM

Post #8531464

Who can resist that smiling face --- the very picture of optimism!
mauryhillfarm
Vashon, WA
(Zone 8b)

April 30, 2011
9:30 PM

Post #8531469

Sweet pictures of a sweet girl with chutzpah. But better yet the news that she is coming through this.
Willowwind2
Union, WA
(Zone 8b)

May 1, 2011
9:30 PM

Post #8533588

Beautifully warm today. 66 here.
Soferdig
Kalispell, MT
(Zone 4b)

May 2, 2011
3:13 PM

Post #8535195

Chutzpah thats the word I shall use. My little "hoodspa" is her new name that Pa calls her. Thank you for the idea my friend. Perfect!
Jan23
Salem Cnty, NJ
(Zone 7b)

May 2, 2011
3:22 PM

Post #8535213

Love it!!!
Soferdig
Kalispell, MT
(Zone 4b)

May 23, 2011
10:52 AM

Post #8582061

Well my Charlize is approaching her last chemo. Her spirits have been wonderful. At least until somebody's PIT BULL attacked her. She was fortunately wearing a thick coat when the dog charged her playing on the grass outside her home. The dog took her down and started chewing off her jacket. My daughter unable to do anything prayed instantly and the dog jumped back and walked to the owner rushing to the scene. She has a bruise and hole where he bit her on the left chest, but fortunately there She has a CV catheter on the right and if that was taken out she would have rapidly bled to death. I felt great amount of anger to the owner and the dog when I heard but I suppose my Charlize is following in the footsteps of me. I too was attacked by a doberman as a young boy. That one I had to fight off myself (and some helpful angel). God is good! My Charlize is going to have a wonderfully exciting life.

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GardenSox
Sacramento, CA
(Zone 9a)

May 23, 2011
11:29 AM

Post #8582127

Wow. Thank God she is okay!

I'm a firm believer in leash laws and this story only solidifies my stance.
Jan23
Salem Cnty, NJ
(Zone 7b)

May 23, 2011
1:43 PM

Post #8582420

God is sooooo good. glad she was wearing that heavy jacket. Exciting life indeed. Can't wait to hear the next installment, but without the danger.

I'd like to put a leash on that owner.
springcolor
Lake Stevens, WA

May 23, 2011
2:22 PM

Post #8582490

Thankful that the sweetie is Ok. She is going to be a strong girl in her long life journey. Thank God the chemo is almost over!! Celebrate life!!
Soferdig
Kalispell, MT
(Zone 4b)

May 23, 2011
2:27 PM

Post #8582502

She will need to get over the fear of dogs, and going outside now. Darn the idiot who lets her dogs (PITT BULLS) run free in a strange environment! How stupid is this self-centered idiot!
mauryhillfarm
Vashon, WA
(Zone 8b)

May 23, 2011
8:02 PM

Post #8583266

Totally stupid and selfish woman! Especially with small children living next door. There is no excuse for that.
Soferdig
Kalispell, MT
(Zone 4b)

May 24, 2011
9:32 AM

Post #8584321

This is the battle they are going through with her next challenge. Just one day in a long 7 months of their battle. Please pray to get her through this. God is Jehova the one who heals!
Gearing up for Battle!
Posted 1 day ago
This weekend has been quite eventful. Each day has brought challenges of their own including an ER visit for both Saturday and today. On Saturday evening Charlize spiked a high fever of 102.7 so we had to take her into the ER to get her checked out and make sure she did not have any sign of infection in her blood. We have been noticing that at times she also has been having rapid shallow breathing, and when they were in the ER she was experiencing it, and had a high respiratory rate. It regulated on its own and was back to normal by the time they were ready to go, but we do not have any good diagnosis as to why this would be happening along with all of the other acute symptoms. They ran blood cultures, and took a stool sample while they pumped her body full of IV antibiotics. We were in and out of the ER on Saturday within 4 hours. That was a quick visit, and we were so blessed that it was an empty night for he emergency floor. Today we ended up back in the ER because while Charlize was playing the tubing broke that is connected to Toothless. Let me explain why this is a big deal and abnormal. Toothless is the needle that accesses her port and enables us to give her hydration , meds, TPN and Lipids through her central line. Attached to Toothless is a small piece of tubing that is about 5 inches long and attached to the tubing is a clave that allows us to connect all of her flushes and IV lines for hydration TPN etc. Directly above the clave is a clamp that allows us to clamp the line so it keeps a constant backpressure on the line and blood does not back up into the line. When her tube broke the clamp and the clave came off with it, so there was not way to clamp it off, and there was freedom for germs to access her central line and therefore her blood stream. The way Leia noticed that it had broken was that she saw blood spots all over the couch. By God’s grace and sovereignty my cousin Bridget was at the house helping Leia out, allowing Leia to focus on getting this taken care of without having to worry about Caedmon. She tied off the remainder piece of tubing to stop the blood flow and then proceeded to de-access Charlize. There was no way to flush her port because the clave was no longer attached, so Leia had to go into the ER to get re-accessed and flush the port to treat the clotting that happens when blood pools in the port. They arrived at the ER and were blessed to have an IV therapist already there waiting for them. They were able to get her settled in and re-accessed with little difficulty. Once she was re-accessed they flushed her port with the TPA (anti-coagulant) and then we wait for an hour for it to do its work. After an hour they were able to pull back and suck all of the clots out of the port and they flushed her full of heparin and she was ready to go.They drew labs again and ran the cultures with everything coming back clean, showing that nothing migrated through the open line when it broke. This type of break is very unusual in a line, and the staff said that they have never seen a line break like this before. Truthfully, I am tied of hearing that kind of response; though it is good to be a pioneer in some things, this is not the arena that I want to pave the way in. Regardless we accept it and acknowledge it as an area for more focused prayer. Once again we were blessed with only a 3-4 hour ER visit, and while they were there the nurse order both Leia and Charlize dinner and one of Charlize’s favorite nurses came down to comfort her and snuggle with her. Though it was a hard and exhausting evening we were blessed in many ways during the visit.

The info I shared above was the update on our current situation, the rest is going to be more of an update of my heart.

As I left the parking lot of our condo complex this morning, I passed the site of Charlize’s attack from the Pit Bull. As I drove on, I began to pray and just talk to Jesus about the strain and fatigue of my heart and asked Him to give me strength for this day. Immediately after praying that, he reminded me of this passage in Daniel chapter 6:
“So the king gave the order, and they brought Daniel and threw him into the lions’ den. The king said to Daniel, “May your God, whom you serve continually, rescue you!” A stone was brought and placed over the mouth of the den, and the king sealed it with his own signet ring and with the rings of his nobles, so that Daniel’s situation might not be changed. Then the king returned to his palace and spent the night without eating and without any entertainment being brought to him. And he could not sleep. At the first light of dawn, the king got up and hurried to the lions’ den. When he came near the den, he called to Daniel in an anguished voice, “Daniel, servant of the living God, has your God, whom you serve continually, been able to rescue you from the lions?” Daniel answered, “May the king live forever! My God sent his angel, and he shut the mouths of the lions. They have not hurt me, because I was found innocent in his sight. Nor have I ever done any wrong before you, Your Majesty.” The king was overjoyed and gave orders to lift Daniel out of the den. And when Daniel was lifted from the den, no wound was found on him, because he had trusted in his God. At the king’s command, the men who had falsely accused Daniel were brought in and thrown into the lions’ den, along with their wives and children. And before they reached the floor of the den, the lions overpowered them and crushed all their bones. Then King Darius wrote to all the nations and peoples of every language in all the earth: “May you prosper greatly! “I issue a decree that in every part of my kingdom people must fear and reverence the God of Daniel. “For he is the living God and he endures forever; his kingdom will not be destroyed, his dominion will never end. He rescues and he saves; he performs signs and wonders in the heavens and on the earth. He has rescued Daniel from the power of the lions.”
When I recalled that verse, I saw again the replay of the attack. As if watching the movie of the event in slow motion, I could see the fierce determination and evil glaze in the dog’s eyes as it charged Charlize, and how quickly and with such force that she was pinned to the ground. Then the supernatural intervened and God seized the dog, shutting its mouth and shutting it down as the owner (a small Asian women) ripped the dog off of Charlize. As I relived that moment in my mind’s eye God spoke directly to my soul, and said so clearly “Just as I sent an angel to protect Daniel and I shut the mouths of the Lions, I also was there with Charlize and protected her as I shut the mouth of that dog and pushed it off of her.” I began to weep because I remembered the welt on her cheek from the impact of the dog’s nose on her face, but the impact stopped there. All of us know that a Pit Bull pronouncing that type of behavior and aggression does not stop on a dime and pull off of a child when it has it pinned to the ground face to face. This is undeniably God’s hand of protection and grace. The second thing that God spoke to me is that the enemy is hard pressed to destroy Charlize, seed fear in us and steal our joy, but again I heard him speak to me, “I love her and I will continue to protect her, keep abiding in me and I will in you.”
I felt led to share this tonight, because I feel I heard so clearly from the Lord for two reasons. The first was to bring peace and encouragement. The second was to bring about a greater intensity of pray amongst all those who pray for us and support us. The past 3 weeks have been increasingly difficult, culminating with the dog attack, a high fever, and a broken line. I know that you all pray fervently for Charlize and our family, but as we approach this last round of chemo, I am sensing a fierce battle at hand. For Ephesians 6:12 reminds us that “our struggle is not against flesh and blood, but against the rulers, against the authorities, against the powers of this dark world and against the spiritual forces of evil in the heavenly realms.”
Thanks cannot be expressed in an appropriate measure for the prayer and support that you all have blessed Charlize and our family with. You have been an active agent in the movement of God’s hand on her behalf, for her healing, protection and well being. We love you all.
God took pretty good care of this baby so we might be all allowed to participate in an eternity with LOVE, ACCEPTANCE AND FORGIVENESS.

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Pixydish
Lakewood, WA
(Zone 8a)

May 24, 2011
3:10 PM

Post #8584867

I am simply stunned! I am stunned by the audacity of anyone to allow such an animal to live, let alone be free to roam. And I am stunned by the power of Angels surrounding this child. I can certainly see why you feel as though Charlize is at the center of a great battle. I will spread the word among the prayerful friends I have asking for further support for this special child and her family.
Please tell me that the woman who owns this dog is going to be held accountable for its actions. I admit that I am fearful taking our dogs to the dog park because there are so many pitbulls there. Something in me simply cannot trust them, even though so far they have all been well behaved and I do realize that all dogs need to have socializing time.
GardenSox
Sacramento, CA
(Zone 9a)

May 24, 2011
4:06 PM

Post #8584959

I realize that small dogs like poodles are just as likely to bite (if not more so) than a pitbull, but it is just dumbfounding to me that anyone who keeps a pit bull as a pet would be so ignorant, irresponsible, and irrational as to let it walk about freely even if it usually had a nice temperament. I can't think of a single reason to justify that and in this case it makes me especially angry because I know how much Charlize has had to fight cancer and she doesn't need thoughtless people making it harder for her.
Willowwind2
Union, WA
(Zone 8b)

May 24, 2011
5:45 PM

Post #8585185

That story gave me a hard 'thump' in my chest. Crossing everything during this last round of chemo. Hugs, kisses and best wishes to you and your family.
Portland1
(Judi)Portland, OR

May 24, 2011
6:52 PM

Post #8585337

Charlize and her whole family are the bravest people I know. I've never met them, but you know what I mean. Bless that sweet child.

As for pit bulls, I certainly do not trust them at all. Not one bit. My dog was attacked by one while we were walking down the street. Both dogs were leashed and as we passed each other, the pit bull lunged at my Koka and got her nose in his mouth and would not let go. He flung Koka back and forth in the air and the woman who owned him did nothing except scream. Many neighbors came to the rescue and he was finally pulled off of Koka, but I had to take her to the vet immediately because her snout was extremely swollen, and she also had puncture bites on her chest. The vet (Dove Lewis vet hosp - a very reputable and well respected place) said they do not allow pit bulls to wait in the waiting room but make them stay outside until they can put them in an exam room. We later found out that the pit had attacked and maimed several other dogs in the neighborhood, and it is now not allowed off of the property of the owner. I'm sure there are those that will defend these dogs, but I think their unpredictability and the nature of the way they bite, attack, and refuse to release their victim makes them dangerous. I don't know why anyone would want to own such an animal. And for those of you who want to tell me how wonderful they are, don't bother. Stories like what happened to Charlize make me angry, so very angry. What are people thinking?

This message was edited May 24, 2011 8:23 PM
Jan23
Salem Cnty, NJ
(Zone 7b)

May 25, 2011
6:48 PM

Post #8587410

I am here in Texas and am thankful for access to internet, though I am stunned by the latest news about dear charlize. Thank you for the privilege in sharing your heart, Steve, {{{HUGS}}} all around and prayers going up fervently for your sweet pea. Thankful for all God's provision for Charlize this weekend. Still very angry at the pitbull's owner. What are people thinkin, indeed, Portland?
Portland1
(Judi)Portland, OR

May 26, 2011
7:43 AM

Post #8588207

Evidence-based medicine, evidence-based design, evidence-based dog behavior.

Sofer, I think of your family and Charlize often. She has had more than her fair share of "testing" and is still radiant in her photos. Amazing child.
Amber_lee
Seminole, OK
(Zone 7a)

May 26, 2011
2:01 PM

Post #8588957

I just can't imagine what more that sweet angel can be subjected to. This has brought me to tears. I have been attacked and bitten twice, both as a child, and it was very scary. She is going through so much I can hardly bear for her to have suffered a dog attack too. I am not scared of dogs and in fact am an animal lover so maybe she won't end up with a fear of dogs in the long run.
I will be praying even harder for her and your family for this last round of chemo.
Soferdig
Kalispell, MT
(Zone 4b)

May 26, 2011
9:23 PM

Post #8589888

She thrives and is going outside easily now. She looks both directions when leaving the alcove and most importantly yells "Back off!" She is going to survive and become a person of influence and great power with the Spirit of God living in her young and completly aware self. Thank you all.
This is a good shot I just downloaded of her.

Thumbnail by Soferdig
Click the image for an enlarged view.

Soferdig
Kalispell, MT
(Zone 4b)

May 26, 2011
9:34 PM

Post #8589903

This was taken just last week with her brother on the left cracking a much needed laugh. My daughters comments to her friends how they keep laughing.
What do you do to laugh?
Posted 2 days ago
I (Leia) just have read the last three posts myself from Brent. And on "A Day of Recovery James McClimans asked,"What do you do to laugh." I thought that was a great question. We laugh often actually, mostly at our Childrens silly antics with us and the hospital staff. But tonight we had a really good deep laugh. And it was a simple thing. Watching "Americas Funniest Home Videos" while we ate dinner at the Tree House. There were some really funny animal and kids videos that sent us laughing so loud that other people were coming in the dining area to see what was going on. It was a great fun and a healing laugh. The simple things in life like Animals and Children.
Also we find so much joy from all your responses to us and to eachother through this blog..God is using it for His Glory that is for sure. Thanks for all the amazing encouraging comments these last few days. I was teary eye reading all of them. They bring a joy to the soul which in turn allows us to laugh at life.
On another note...Charlize is still doing great. No vomiting! Praise God for this rest. Good night and God Bless you all...Leia

Thumbnail by Soferdig
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Jan23
Salem Cnty, NJ
(Zone 7b)

May 27, 2011
6:45 AM

Post #8590432

Laughter - the best medicine!
Soferdig
Kalispell, MT
(Zone 4b)

May 27, 2011
9:28 AM

Post #8590681

The end of Charlize chemo therapy is now! She received her last chemo wed. and we are all excited. My SIL comments below the thoughts of this event. I for one at a distance am thrilled. I so miss my Charlize.
It is very surreal to know that Charlize is finished with her chemotherapy treatments, and that she will not be getting any more poison pumped into her body. It has been all that we have known for the past six months. Our lives have been dictated by chemotherapy and its affects. To know that we are going to experience much different days ahead is very surreal. The emotional response that I though I would have at this point was very different then I imagined. When I arrived at the hospital after work on Wednesday afternoon, I did not know that Charlize had already received her last dose of her chemo; I thought it was scheduled for the evening. When I walked in the room and sat Caedmon on her bed, she looked up with her biggest smile and while bouncing on her knee’s exclaimed with excitement “Dad I am all done with chemo, I had my last chemo today, I AM ALL DONE!” I looked over at Leia with disbelief and we both began to tear up. I gave her a big hug and a soft little kiss on her head, and told her I loved her very much and that she was such a strong and brave little girl; “You did it babe, no more chemo.”

Another aspect of why things remain surreal is because I know and acknowledge that she is no longer getting chemo, but the affects of it are still devastating her body. She is still doing great with normal stools, and the vomiting is remaining at a only a few times a day, but she is also getting paler by the day, and the pain has began to set in. The worst part of this all for me is when she wakes up in the middle of the night screaming in pain, and there is nothing I can do to take it away. Mommy is the greatest medication at that moment; snuggles from mommy coupled with Ativan take away everything bad and awful. The TPN and Lipids are a constant reminder of her fragility and the fact that they are sustaining her function and life in a large degree. We still have another 6 months of rehabilitation of her GI system until it will be functioning normal again, but this week the doctors are going to be weighing in on all the options for how to start the rehab of her GI system and see how quickly we can begin to transition off of the TPN. We know that this transition will not happen for another 3 weeks, but I am looking forward to it with as much anticipation as I did to ending her chemotherapy. It is the Joy of what God has done and continues to show us that gives us the strength to endure and allow him to ripen the fruit of patience in our lives, as we move through this season. God is good and does good and we have been called according to his purpose, our only aim is to finish the race and complete the task the Lord Jesus has given us. (Psalm 119:69; Romans 8:28; Acts 20:24)

Thumbnail by Soferdig
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Pixydish
Lakewood, WA
(Zone 8a)

June 2, 2011
10:26 AM

Post #8604012

Beautiful! I am so happy to hear that chemo therapy is over and done with. Let the healing time begin!
Jan23
Salem Cnty, NJ
(Zone 7b)

June 2, 2011
11:20 AM

Post #8604103

AMEN and AMEN'!!!!!!!
mauryhillfarm
Vashon, WA
(Zone 8b)

June 3, 2011
8:40 PM

Post #8607370

Great news that chemo is over and succcessful!! I sincerely wish that healing continues and that pain and difficulty recede.
Soferdig
Kalispell, MT
(Zone 4b)

June 5, 2011
9:29 PM

Post #8611893

Happy Birthday Charlize! 3 years old!
Posted 2 days ago
We are home! We went to bed last night with a grand plan for how we were going to celebrate Charlize’s Birthday in the hospital. We were excited for all that was planned and the opportunity to celebrate our little girl with everyone that has loved on her and cared for her at the hospital for the past 6 months. When we woke this morning we got unexpected by great news, that Charlize’s ANC went from 180 to 3500. The doctors want her to clear 1000 before they will discharge us, so this mornings report from her labs showed that we were on our way home. After readjusting our plans for the day, which is never easy to accomplish when you are exhausted and stressed, but we pushed on through the morning and had a great celebration. Leia took Charlize on a ride around the floor to see everyone and I stayed behind to decorate her room. When they made there way back, she was so surprised and excited to have her room decorated special for her big day. We partied so hard that she ended up going down for a nap 2 hours earlier then she has all week; and it was not even prompted. She just fell asleep while she was watching her movie. We left up the décor until we had everything packed up and ready to go. It was the last thing to come down. All of the nurses and staff made a card for her and the child life team got her a present. We had cupcakes for all of the nurses and staff and everyone had a great morning and a great celebration with Charlize.
We were able to get everything in order and get discharged by 3:30pm and made a quick stop at the park to meet Charlize’s best little girlfriend Sophie, and then headed down to the beach upon Charlize’s request. It was a beautiful sunny day and that is her favorite place to play in the sun. We made it home, had dinner, started the nightly meds and then began the bedtime procedure for both children and we are following suit after some time to decompress together with no interruptions.

The last two nights have been filled with consistent vomiting and no sleep, the diarrhea and pains also still remain persistent, so we will remain persistent in prayer. Today’s was a shorter post because I am frankly too tired to bring about anymore detail and expand on our day. In a sentence: It was a great Birthday, I can hardly believe my little girl is 3 and keep praying
springcolor
Lake Stevens, WA

June 5, 2011
9:35 PM

Post #8611895

So very happy she had a great day! Hope that she recovers soon. Happy Birthday.
Jan23
Salem Cnty, NJ
(Zone 7b)

June 6, 2011
6:35 AM

Post #8612319

Happy Birthday dear one'!!!!!
Soferdig
Kalispell, MT
(Zone 4b)

June 6, 2011
10:28 AM

Post #8612839

I have another page and a new picture.

much to celebrate!
Posted 1 day ago
Charlize had a better day today. She made it 24 hours without vomiting, making it all the way through the night without vomiting, only waking a few times with pains, but going right back to sleep. She only vomited a couple times this evening and was complaining of pains this evening around 11pm, so we gave her some meds with the hopes that she makes it through the night without any more pains or vomiting. She is still having the diarrhea, but it is not as frequent as it has been over the past week. She is definitely heading in the right direction. Even though she is still having these acute symptoms, they are not coming on with the frequency and severity that she was experiencing just two days ago.
In fact we have had many blessings to rejoice in and give God thanks for over the past two days. Yesterday she made a miraculous jump in her WBC, and Neutrophils bringing her ANC from 180 to over 3500 – Amazing! This enabled her to spend part of her Birthday with her friends in the hospital, but also get discharged; what a Birthday present from God! – only something He could have given her: Healing! She got to spend time at her favorite place, the beach on her birthday on a beautiful sunny afternoon. She had a great night with no vomiting (the previous nights she woke numerous times vomiting), woke up feeling good this morning, and had a beautiful sunny trip to the aquarium at Redondo Beach for a few hours. We have a lot to celebrate!

The biggest celebration of the day was when Charlize was able to go down to Ruston Way in Tacoma and see her friend Randy cross the finish line of his Ultra Marathon. We thought that she was not going to be able to be there because of how our last admit and stay was when she was recovering from neutropenia and chemo. By God’s hand and healing touch she was able to get discharged 6 days early then what we stayed last time and was able to see Randy finish his marathon. Randy is one of Charlize’s teachers in Kids’ WORLD at Church. He entered a 50 mile Ultra Marathon and dedicated his race to Charlize. He used the race as a fundraiser to raise money for Charlize and our family. Charlize had her little support sign in hand at the finish line waiting for Randy as he crossed over completing his 50th mile. It was a very special moment for everyone that was there, and we were all blessed tremendously. As you pray for our family tonight please also pray for God’s hand to rest upon Randy and restore his body and give him a renewed strength as he heals from the race.

I managed to remain cold free, Leia is getting over hers, but Caedmon just cannot shake his. It is keeping him from eating and sleeping well, so please continue to pray for him.

I have added some new pics from our week

Thumbnail by Soferdig
Click the image for an enlarged view.

Jan23
Salem Cnty, NJ
(Zone 7b)

June 6, 2011
3:58 PM

Post #8613591

HOORAY for Charlize being able to be at the finish line. May Randy's body recoup quickly from that race. Many blessings in the days ahead.
Pixydish
Lakewood, WA
(Zone 8a)

July 16, 2011
10:24 PM

Post #8696977

Here's to praying it's all good healing from here on! No pain, no vomiting, and living a normal life. More playing at the beach! I've never heard of an ultra marathon. 50 miles? It takes my breath away.
Soferdig
Kalispell, MT
(Zone 4b)

July 26, 2011
11:15 AM

Post #8716420

Charlize is moving to this new thread due to its length. http://davesgarden.com/community/forums/t/1200282/

Thumbnail by Soferdig
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