Another good report on Adam ~ UPDATE:
Adam was hooked up to an 18 hour EEG test yesterday, there was no change in brain waves! Yippee!! No brain damage occurred that they can tell and no seizure activity. He did so well they cut the test short, released him from I.C.U. and sent him back to the Barbra Bush ward so he can resume his chemo treatments this week. ^_^ This is good news and a step forward I think. Lord knows this family has taken too many steps backwards already. Praying for continued healing and positive outcome. Thank you friends for holding him in your thoughts and hearts, it means the world to me. I do believe in the power of prayer and miracles. ^_^ ^_^ ^_^
Finally, no tubes...breathing tube is gone, drainage gone, he only has his feeding tube in place just in case.
Tonight the Texas Road House in Scarborough, Maine will donate 10% of all sales from 4pm till closing to help Adam and his family!!!! Unfortunately it's over a 3 hour round trip and Justin is sick so I didn't dare leave. :( Praying for a good turn out!
Well I hope you all had a better evening than I did. Just back from a few hours at the ER. Broken coffee carafe plus left hand equals major ouch! Two gashes. One at the base of my left thumb and the other, more serious one, ripped open a good chunk of my left index finger. It's mostly numb on the outside half so good chance of some nerve damage. Hopefully, temporary.
About seven stitches on that and five on the thumb. Have to go see the plastic surgeon who stitched me in a week to decide if any further work needs to be done.
Told my wife this is a sign for me not to do the dishes. ^_^
Karen, Classic Viburnums in Nebraska--listed in the directory of mail order places on DG--has virtually EVERYTHING. They even emailed me first to see if I'm going to be in town before sending the order next week. Gary Ladman spent a lot of time on the phone talking viburnum with me. Of course, the closer to home the better if you can find your variety locally.
Oh no!! Praying the numbness is just temporary. Heal well.
Yesterday I went to an azalea garden. Spectacular! Will be going again tomorrow, so will take pics. There was a lovely fragrance in the air; with my nose as it is, I had to find the source. I saw some viburnum and headed toward it. Yep, that was it. If I can smell something it must REALLY be fragrant. Will get pics tomorrow when I go back and then you can tell me which kind it is, please.
was in the yard today and heard bird wings flapping just above my head - thought i was being attacked - turned around and two male bluebird where fighting and fell to the ground 2 feet from me - they were pecking each other - then took off still chasing each other - no sign of a female although one had to be close
I had THE BEST day, lunch and shopping with my 2 oldest Grandaughters, windows down in the car on the way home...singing with the radio @ the top of our lungs. :) Wildberry lemon aide and a donut for a snack, then brought Hunter to softball practice so I could see some of her awesome moves, now home again. Tired and full but extremely grateful for the time with them and the beautiful day. ^_^
Adam had chemo via I.V. the other day, he handled it very well, just sleep alot. Vitals were good all day and he had no visual side effects. We are thinking it's working on the tumor...he is showing signs of improvement he took his pacifier and put it in his mouth. That is something he hasn't been able to do in a while!!!!!!
Good boy Adam, keep it up♥
Hope your hand is getting better Victor.
Darn chicken was up squawking pretty loud at 3:00, I though the fox was at her, Lou went up to check and she was fine no fox...seems she didn't like where the new chicks were sitting, on here besting box. I never really did go back to sleep, it's going to be a long day...
Glad you both had a nice day, Celeste and Marilyn! Both are my cuppa tea as well!
So good to hear about Adam, Celeste! And about your healing hand, Victor. Hope all goes well with your Mom too.
Nice day for traveling today! We're headed for a cemetery in NJ. Hank wrote his book this winter about his Uncle who was at Pearl Harbour during the attack and who fired at the enemy. Hank wants a shot of his gravestone for the book. Then heading north a bit and stopping. His brother isn't up to a visit, so we've nixed Long Island.
Prayers for your mom Victor
Running my least favorite sport, good luck to him, my nephew used to do cross country track I had joined softball cause I figured it had the least amount of running, the coach made us run laps around the soccer fields...grrrrrrr
Cloverleaf Cemetery in Woodbridge in the veterans memorial park. We just left there, and very close to the veterans area is an interesting Chinese/korean/Thai section with beautiful very large fan-like monuments for each grave with beautiful and colorful characters on them. The cemetery worker that helped us put a flag on Uncle Taras's grave explained that the Asian people buy 4 plots for each grave. The markers are really large. One or two people are buried per grave. It is the only section that allows above-ground stones. I was so impressed with that section. On many of the markers, there were cameo-like photo holders that have photos of the owners of the monuments, some stll alive and others deceased. The "cameos" have brass covers that you lift to see the photos. Very interesting.
What a wonderful project for Hank to undertake...every family should have a historian, so much is lost between the generations...hope your Mom is doing well, Victor...Jen, I agree...a sick child needs to be removed immediately...no common sense these days...
Just heard from my sis. After having the stent put in, she started bleeding. They had to go back in and put another and 'patch' the hole. My sister will see her after work. They said she is okay now. Thanks to all.
I would like to introduce you to my granddaughter Leah Rose. She was born yesterday, 9 weeks early. Mom and baby are doing well, Lindsey improved greatly today and Leah actually is off of her cpap and on a nasal cannula so also has improved. David is already becoming quite the attentive dad and even changed her diaper today.
Welcome, little dear one, to a world that is sometimes over-lit in light bulbs, but that's so the medical staff can do their jobs...just slumber away, and get stronger, and soon you'll be running in fields of clover and daisies and butterflies and queen anne's lace and exploring a beautiful world...
Oh Debi, she is so sweet! Congrats! I see many wonderful experiences ahead for her and for you and her parents! Aren't you the sly one, not spilling the beans last night when you asked me about icab! Lol. What a lovely surprise this morning! So happy for you all! :)
Thanks Louise and Memory. And Victor. I just got back from the hospital, both mom and dad got to hold Leah today. They stopped her antibiotics after 48 hrs so that is awesome. going to start feeding her tonight.
I'm so proud of David, he is holding up so well, and taking such good care of Lindsey. And he's an old pro with Leah already. The NICU nurse was good and had him hands on very quickly. It scared him at first but now he's fine. And Lindsey too, I just love her. Can't wait to hold Leah myself.
Way to go, David! Mom's nursing genes helping, I think.
Saw both mom and MIL today. Ugh - stressful day. MIL has developed C diff so she is not well at all and her stay is no doubt extended. She looks so skinny and old.
My mom, it turns out, had a very close call. The balloon catheter tore a hole in the cardiac artery and it was a life and death emergency. They inserted the second stent to 'plug' the hole. They had to enter the other side groin artery for that one and left the catheter in overnight to be sure. So she is now very sore. I will bring her here tomorrow because she lives on the fourth floor and cannot do the stairs for a few weeks.
So I will probably end up with both moms here soon! God help me!!
My granddaughter HayHay was born 4-5 weeks early...the 1st thing Doug & I saw when we walked into the room was Garret, old clothes, stubble on his face, eyes closed, holding her...I'll never forget that Debi, & I know you won't either...Victor, prayers for your whole family...sounds like there's a long road ahead for both Moms...
Gosh Victor that's tough, prayers going out for your moms, you too.
Debi good parenting comes from good parenting...David will do great!
Jan the kiddies are so cute, I'll never see 6 but will settle for my 3 and hope for a fourth!
I was looking at craigslist for pavers and came across "free" mulch, wound up getting a whole truck load for nothing and it was right around the corner from the diner we were going to for dinner. Lucky find and it's nice. I still need lots more but I'll take free any day!
She was 2 lb 3 oz, Lindsey said she hasn't lost any weight yet. They were going to weigh her when they were getting her back to bed yesterday but I didn't stay in the room so they'd have more room to work. They had to put in the NG tube to start feeding and I didn't want to watch that, but the kids stayed through that.
I actually stayed in bed from 9pm til now, woke up frequently but managed to go back to sleep, much better than the last 2 nights.
i would leave it as is and see how it does - i have a witch hazel red bud that uprooted or broke below soil level from the storm in Oct. - one branch has leafed out others have buds - i just staked it and hoping for the best - i will replace it if i have too - great plant.
Bill I usually do mine in May but never got them dug last year and figured they were goners, most all of them are up! Your still a bit colder than me I would wait a few more weeks, they like the warm ground.
On my way to the hospital this morning I was stopped at a red light waiting to turn, and got rear ended by a big truck with some kind of load on the back of it. He hit me twice, pushed my car forward the first time then hit me again. The jerk never got out of the truck to talk to me. Told the cops I changed lanes in front of him and cut him off.
Not what I needed today. Cop believed me, said the damage was consistent with my story. $3,500 damage.
5-7 days for the repair.
On the bright side, Leah is doing great, is now getting 5 cc of feeding every 3 hours. And they get her up every 3 hours so it's more holding time. It was Davids turn to hold her at 2:30.
I called my husband after the accident and he came and picked me up, dropped me off at the hospital, then called the insurance and took my car for the estimate. He picked me back up at 2:30 so I didn't see Davids turn.
When I was driving in Manhattan the other day, on my way home from visiting my mom, some woman passenger in a cab yells at me to 'pick a lane'. I was not weaving and the cab driver was not complaining - just this loudmouth. You can guess what came out of my mouth at that point.
Have an ADAM UPDATE:
Adam is feeling good today! The doctors are impressed with how alert he has been ..The nurse took out his feeding tube so hopefully he will want to drink some milk today. Physical therapy is here stretching his little body and testing him with focusing, reaching, and grabbing objects..The plan this week is to figure out a long term plan for his ventrix in his head so hopefully they will get the shunt in soon.. and more chemo next week!! Its rainy outside but sunny inside of Barbra Bush wing. ^_^
Deb I'll add that I'm glad your OK too and good news that Leah is doing so well♥
I love hearing the good news on Adam!
Victor hope the hand and the moms are doing well too.
I talked to my son last night and Domenic may have 'flat head syndrome' :( Seems to be pretty common now with all the babies sleeping on their backs but it is still a little disheartening. He has to see a neurosurgeon to see if it's bad enough to require a helmet. We told Joe it needs to be a Flyers helmet for sure!
Thanks for that link Allison, from reading a few things some people think the helmet is a money maker and not needed...we will see what the neurosurgeon says. Anything associated with the head even if it's common scares me with my son having epilepsy...I've seen my share of docs and don't want him to have to go through it too.
maybe it's just me.. but if that helmet puts pressure in the wrong spot couldn't it do more damage?.. my niece was born with a squashed head and won't get over the mentality of a 7 year old.. makes me nervous too.. they had to do a c section with the triplets in there.. and she was trying to get through the birth canal and couldn't fit.. long crazy story but they were giving her drugs to stop the labor because it was only 7 1/2 months.. and I think that was the thing that caused the problem.. the extra bit of weight makes me wonder about neck issues later as well.. some of this non natural stuff makes me nervous .. don't mean to make you more nervous.. so sorry if I did.. but I am just concerned
Thanks Allison, you didn't make me more nervous since I'm already as worried as can be. There are a few things going on I haven't posted about yet...don't want to worry myself to death unnecessarily...he needs to see a specialist at CHOP for something going on with his eyes too called a Nystagmus.That appointment is sometime in May...what worries me most is my DIL being ble to handle a "special needs"child. I hope she suprises me...
has anyone one heard that deer saliva has an enzyme that does not allow re-growth on plants? someone on another forum mentioned this and it does not come up immediately on any google search - i did find one mention on a garden blog
Debi this is a response to your post on Garden Projects.
Times have really changed. When my brother was born 70 years ago. My mother had been in the hospital 10 days and came home to stay on a cot on the first floor with him in the room.
My hospital stay was a week and I wasnt permitted anyone except my husband.
My grandchildren were born in birthing units with husband present and I could have been there on the labor deck, except I believe this is an important bonding time for father and mother and labor should not be witnessed by anyone,not even the mother LOL.
Modern times are great. Enjoy watching your grand daughter grow.
Times have changed! I can't say enough good about the NICU, even Leah's great grandmother could visit 22 hours a day, not that she would. They really encourage family involvement. When the nurse asked me to help, my mouth said yes, but my mind said no, I'll break her! I'm waiting to hear from David now, he worked today, so not sure if he came home after work or went right there.
Teachers & aides need special training & obviously are not getting it. Our 4th grade teacher would shout & was not rehired. she would not shout bad stuff, just when she wanted descipline she would use that method. It didn't help that she was Jewish & when at another job the summer before told someone that she would be teaching in our town. She was told that she would like it because 'there were no Jews there'. (Not true). So I expect that she came in with a chip on her shoulder, but also was not trained to handle a class as she should have been.
I am sure those teachers received plenty of specialized training. You have to these days to be certified as special ed. They are just creeps who should not be in those positions. They figure they can get away with anything.
That article was in my paper this morning...poor supervision from the top down...my DH was in everyone's classroom every day, unannounced...he was also in the hallways, and in the lavs, in the cafe...obviously no one checking at that school...today's principals are sadly absent from the places they need to be most often...one that I worked for locked himself in his office for the entire day...kids thought the custodian was the principal...
While traveling this week, my DH and I decided the TSA staff need practice, so we "opted out" instead of getting the full body scans. It took 15 minutes until they could do a "female" search.
I am friendly with a neuropsychologist who corresponds with the media on a regular basis about the effects of the procedures upon people with trauma and other difficult issues. She is getting more traction on moronic school officials and on attitudes about hoodies
Glad that your finger is improving. I can offer a painful heel in spite of a cushion jel in the shoe. Drink plenty of tonic water to help the tingle & best wishes for continued improvement.
If I type too much I can't send brain waves?
well I am mixed on how I did.. there was a whole section that didn't pertain to my job and I didn't know any of the answers.. but I am guessing my competition is in the same boat.. the rest went well.. and I feel good about it.. won't be for a while before we get results
Bill, thanks for telling me about Lazy S&S. I will check them out. Rosemary, I will also check out that Classic Viburnums in Nebraska, as well Looking for the V. juddii of my dreams...
Victor, sorry to hear about your big booboo. Yikes! Hate it when things like that happen. I once dropped a glass while getting it out of the cabinet. It fell on top of the microwave and broke, and then it landed right on my foot, up near the ankle. A big sharp piece went right into my foot, and it was sticking out. It broke inside my foot, and I had to have minor surgery to remove a couple of pieces. Had nerve damage for awhile, but finally got better. Not fun.
BA, I have a pair of cardinals that nest here every year. the female used to peck at her reflection constantly in my shiny hubcaps on my car. Later, when I got a different car, she began pecking at her image in my car's side mirrors. I had to resort to putting plastic grocery bags over the mirrors to keep her from going at them, as she was scratching the car doors and mirrors up, and was pooping all over the sides of the doors.
Debi, congrats on the new granddaughter! OMG! I can't believe that jerk in the truck did that to you. I know someone who has done that to people on purpose. They need anger management. I'm surprised your car wasn't totaled. Guess the damage wasn't bad enough. Glad you're okay. Did the driver leave the scene?
Victor, I'll pray for both your mother and MIL. You have a lot on your shoulders. I hope they both get well soon.
Ronnie, nice score on the free mulch! Sorry about your grandson, Ronnie. I will be praying. I'm sure everything will work out well.
Marilyn, I had the subscription fairy pay for another year for me, too. This was the second time in a row, and I had already paid for my subscription, so I'm paid up for 2 years now. Well, 1.5 now, as this was back in Oct., I think.
Jen, your niece is a beauty. I wish her well.
Celeste, still praying for Adam. Sounds like he's doing well so far.
Hurray for all victories, including math olympiad!
So sad here. DD2 cracked up the car (again). Likely too bad to repair ourselves this time. Problem with new drivers is if you don't let them drive then they don't learn anything, and then its back to being a parent taxi service too. I am really hoping she is understanding more about how to drive defensively after this.I do think she's starting to learn the value of money. She's been wanting a car for college too, but I think for freshman year its very easy to say no. If it's repairable, she has to do it!
UPDATE ON BABY ADAM ~
I'm feeling really bad that they have to face this. From Megan his Mom's FB post this morning.
"Baby Adam is not feeling well again today. We just found out that he has a fungal infection in his blood and no immune system to fight it... Hopefully the new antibiotics and anti fungal medicines will work by themselves. The x-ray showed the air bubble in his belly has gone down, but now he has the new problems with the blood infection, Poor baby cant catch a break. Oh and we had the 3rd doctor tell us (very unproffessionally) She doesent "THINK" he will survive in the long run. Keep your thoughts to yourself and give us the facts about whats going on. Take your survival rates and numbers and shove them... to us his chances of recovery are 100%!!!!!! Sorry everyone I am very stressed out today. PLEASE KEEP PRAYING"
I'm with you all the way on that one, Celeste! I've seen enough miracles to know that percentages and doctors don't have all the answers. Signing off right now tonadd some more prayers for Adam and all of you. Hugs!
I don't understand some doctors, we had one say to us that there was "no hope" for my son and his seizures when we were looking for a what I felt like was the hundredth opinion, I felt like someone stabbed me in the heart. Going back to his original doc who was and still is a sweetheart told us NEVER to stop hoping, every day someone somewhere was looking for a cure. A few months later he got into a trial medicine program and he was helped immensely, never would have found it had we given up. Wouldn't have my grandson Domenic to this day had we stopped hoping and looking. I know it isn't cancer or a brain tumor but Celeste please tell them never to give up their hope♥♥♥ Adam is in my thoughts everyday.
Oh Celeste, the doctors don't know everything, and some just don't know how to keep their own depression or sense of personal powerfulness in check. Baby Adam comes to my mind as a little fighter, so I am praying that all of you will keep your strength and focus. Bless you all.
On my front, DD2 seems to be understanding what her responsibilities are about always being able to handle unexpected events on the road. DH got back from a long plane flight and declared the car worth trying to fix. This may have been the answer to my worried prayers for two years since she got a license. Some kids just don't learn defensive driving right away, so we hope she gets it now.
Daughters also must make their decisions about college this weekend.
I understand how upsetting that must be to hear and there are doctors who are much more tactful. However, it is a no-win situation for them. My wife knows this first-hand. When someone is paralyzed, the surgeons and acute care docs are notorious for never telling the patient how bad it is. That is left to my wife when she gets them in rehab. Then the family is totally shocked and very angry at her. It's irresponsible not to be honest and leave it to someone else. You just have to be tactful and always leave hope.
They have read up on this rare cancer, they know what they are up against, they just didn't need it said like that. I do realize there are lots of people in denial and I'm sure that is what that doctor was thinking. They are very spiritual people, they choose to pray than to face the ugly possibility and I can't say I blame them.
A man who is in my Bible study told a story about his Dad...10 years ago, he went in for a triple bypass...he was bleeding internally, & twice more the surgeon opened him up to try to patch things...he finally told Bob that his father had 24 hours or less to live...that in 2,000 cases like his, there was no one who survived...Bob's Dad did, and was written up in the medical journal...never stop praying for a miracle...I will ask for prayers in church tomorrow for Adam...
Sherrie, love that necklace! LOL! I would wear it, and everyone who knows me would understand.
Rosemary, sorry to hear about DD2 crashing the car. Good thing she wasn't hurt. They have to make mistakes to learn. I always learned things the hard way. Couldn't learn from others' mistakes. That would have been too easy. Now that I'm older and wiser, I learn a lot from others' mistakes.
Celeste, sorry to hear about the bad news on baby Adam. Will continue to keep him in thoughts and prayers. I can understand the frustration of having the doctor mention what he thought about his survival rate. That's like the docs telling us our sister will never get any better. We refuse to accept that. Wanda is a fighter, and I believe she will get better.
Thanks for the update on your sister, Karen. There are so many who need prayers and support, and i hope to contribute as best i can. It is nice that the Northeast DG community is so thoughtful, and for whatever differences there are among us, this is indeed a commuity.
It certainly is...lots of caring folks...my stepson's wife was in stroke rehab from last June to this March...but she's home, and took a few steps on the sidewalk by Kennebunk Beach...a real miracle...
Quick report here. Final college choices are Oberlin and UMass Amherst Commonwealth College. Every MD I talked to this year told me DD2 would be crazy not to go to UMass Amherst, so i guess she is not crazy, just a little bit reckless with cars, and now a little sore tonight.
DD1 heard lots of advice including from some retired college English professors that she'd be crazy to go anywhere but Oberlin to study humanities, so she's disregarding worries about the people who wear ears on their caps as well as the hipsters. It's starting to become apparant that everyone in a college doesn't drop acid, and she'll find her element. If it's terrible, she can still apply to UMass Commonwealth college next year , but it might be hard to equal the deal Oberlin offered her in a subsequent year.
Oberlin is a good school + their music school a combination which is tough to beat. Every school has nuts who are stupid enough to do drugs. That includes many high schools. The girls should form their own opinions when they get there.
I think the girls did get through their biases pretty well. Only 7% of Oberlin's students are from Ohio, though. Dozens there from Massachusetts. College population is about 3,000, and about 600 of them are in the conservatory. There's a Steinway piano in every dorm, for everyone to use though. I thought the place was amazing, and the gardens were also quite beautiful.
I'll have to tell DD2 that she will drop acid and bases in Amherst the next time hipsters become their topic of conversation :)
It was really hard for my two daughters to decide not to go to the same school, but they couldn't admit it. DD1 is the true emotional owner of our dog too, and he doesn't skype very well. It is an 11 hour drive to Oberlin (and just about as long on planes now that there's security) compared to two hours to UMass Amherst.Her nearest friend from HS will be studying three hours away in Pittsburg.