I would humbly ask for each of your prayers and if your church has a prayer chain that you add our Becky to it. She received the devastating news yesterday that she's been diagnosed with cancer. She doesn't know much more than that...she'll be meeting with her doctor and having a CT done that will provide the additional information needed to determine the treatment route that will be taken. Becky has been through so much starting at a tender age. Those that know her - know her for the strong 'trooper' she is..the animal rights advocate she steadfastly volunteers much time for...the loyal steadfast friend that you're blessed to have in your corner. Now it's HER turn to need folks in her corner...prayer warriors that will hold her up and her amazing hubby, Greg. Please pray as led...personally I'm praying for God's protection, comfort, peace and strength...for the both of them...and of course the healing we knew He can provide. Thank each of you for remembering them in prayers - hugs to all.
Oh no. I will definitely be praying for her. I have seen first hand that prayer and positive energy do have an impact. I was looking at the picture of Becky and thinking that it captures her spirit perfectly - beautiful, laughing, and just Becky in a nutshell. Then I was looking at the angel picture and thinking how serene the setting is. It is the kind of place where I really feel God's presence, the kind of place where I do find myself praying, and then I realized it was the angel in my hillside shade garden! You have amazing photography skills. Sending prayers Becky's way... Terri
Praying and lifting you up for healing, comfort, grace, and strength. Your innate stubbornness determination will see you through... and we will keep you "wrapped up in hugs" (Joyanna's phrase) and love.
I am also in agreement in prayer for you Becky, our God is a God of Love, of Peace, and of Victory!! Let's just claim that victory for you right now! And from now until you see the evidence of that victory, I pray also that He keep you wrapped up in hugs! (I gotta say, Joyanna is brilliant!)
Thinking of you today, Becky, as you do the CT scan... hope you can take your mind away to your last vacation, or your back deck with its bounty of blooms, or somewhere pleasant and distracting while that machine whirls around! I know it'll be a tough night waiting to hear the report tomorrow... praying for grace -- and for good news!!
Our thoughts and prayers are with you today. Thankyou for sharing this with us. May all those health care people you meet today be blessings and blessed, supported in the peace that passes understanding. Via con Dios.
Am joining in with others in prayer agreement. Becky, I have said this before and will say it again...please allow us all the privilege of seeing you through this difficult time. Do not hesitate to ask for whatever you need. In true MAG's spirit, we will be there for you.
I know personally the healing and ministering spirit of this group. I had been here only a short time before getting the same diagnosis, six plus years ago. I felt as if not for Dave's Garden extra special people and the joy I derived from working outdoors with my garden, I would have had a much tougher time.
In case I haven't thanked all of you before now, I will take this opportunity to tell you all that I know your love and caring played a major part in having my case go as smoothly as it did.
Again Becky, please do not hesitate for ask for any sort of assistance. For now, we all pray. Yes maam, you can do it if anyone can.
Update: I now have a name for "it" - Squamous Cell Carcinoma of the cervix - so yes, the woman with a total hysterectomy has cervical cancer...with lesions on the liver...it is one of the most treatable cancers, it responds well to both chemo and radiation - might need surgery to locate the blasted remnants left behind 10 years ago...will know this afternoon what treatment and then I need to see a GYN oncologist as well - this is much better news than I was expecting!!!! :)
Apparently the other doc had it all wrong and treatment won't be anywhere near as easy as expected...the oncologist I saw today can and will consider himself fired...he gave me an expiration date and had absolutely not hope to give me - I'm aiming for Walter Reed or Cancer Treatment Centers of America
Dearest Becky, may your love of Nature send love and healing back to you and surround every cell with health. Go outside some night and sit under a big tree, probably an old, gnarley Oak, and look up at the Heavens...and let there be peace for you. Whatever your destiny on Earth, for however long, as for all of us, may the grace of God surround you always, kind soul.
A roller coaster, indeed... sheesh, you're just starting into the diagnostic phase, and until the "whatever" on the liver gets biopsied, there's no telling for sure that it's even a cancerous lesion... Yep, fire that doc but quick. So I'm praying for the liver "lesions" to turn out to be random bits of scar tissue. Clear diagnosis, successful treatment, and quick healing... and strength and grace while you get through the "what have we here" phase and into the "how are we going to kick it to the curb" phase.
Well, I doubt it's benign lesions - but, I'm calling INOVA tomorrow...also checking on Walter Reed & Hopkins - doc is fired big time, no way am I going back - INOVA has fab reputation & in the top ten in the US...I'm not ready to accept an expiration date
Oh yes, second, and even THIRD opinions are a MUST!!! (had a similar situation with my Little Mamma recently, who had been given an expiration date,.. AFTER having been given a roller coaster ride from the first QUACK. Now she has a REAL doctor and is doing wonderfully!! AND seems to have 'misplaced' her expiration date!!) Definitely a new, REAL doctor is in order for you, and with prayers, we will help you to misplace your expiration date!!! < =D
GOD CAN DO ANYTHING!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
So sorry that you find yourself on a roller coaster this week. Good grief...I thought I was the only unlucky person who tended to get the lowest one percent of the medical graduating classes. As Jill said, you will have to keep your mind as alert as it has ever been in order to survive less than great physicians. I was amazed during the years when dealing with breast cancer and the reconstruction how always at the very last minute I was told something new in regards to the treatment. Being told things at the last minute doesn't allow a person to give proper thought to which way to go with things. Good thing that you have some experience already dealing with doctors who can't completely understand what is going with your body.
Knowing you I don't see you laying down and allowing another mere human to give you expiration dates and such. As so many of us are here to attest, we baffle the medical community over and over, year in and year out. The spirit of life that we all know you have will serve you well. I agree with Happy and believe that our messages to the Universe are working on your behalf. Please continue to update as you walk your way through this maze.
I now have an apt with a new oncologist - who at least looks good on paper (thanks Happy!) - a PET scan Tuesday, on the list with NIH for a clinical study and while all of this truly sucks - I have more hope! I took great pleasure in telling Doc I that I was getting a new doc and a new opinion - I appreciate the support and prayers so much - it means the world to me/us!!! Walter Reed is still very much in the mix and so is Hopkins, surgeon and GP will write all the letters I need to go there if that is what I want & they have contacts there...also contacts at the National Cancer Institute
I pretty much credit my Johns Hopkins team and my superb oncologist here in Frederick with saving my life. (Well, at least they get the medical side of the credit) Daily trips to JH during radiation treatment were a pain for sure, but we wanted that level of expertise, to feel we were attacking the cancer with everything possible. I've heard excellent things about Walter Reed, also. Even more than for surgery & radiation, I think you need an excellent oncologist you can really trust to provide aggressive chemotherapy to kill the cancer without damaging you overmuch in the process.
It's hard, because you feel such time pressure -- you want it Gone Now -- but it's worth taking the extra time for 2nd & 3rd opinions, for additional tests & biopsies, etc. so that when you start treatment you're confident this is the best path to recovery.
Glad you gave that first doc the boot. Bet Greg wanted to shove him through a wall (at least that was my own feeling about him!).
Yes, I need a quarterback leading my team...I spoke to so many people today who were very, very encouraging...I'm assembling my team, just need that QB - I have SO many options available to me, we do have the top hospitals in the country & I have fabulous insurance...so yesterday was a set-back, today we soldier on! I have people all over the world rooting for me & prayers, soooo many prayers...which Chantell has taught me it's ok to ask for - Jill, we were too stunned for Greg to want to punch him, that part came later on :-) the knucklehead doc did do a good thing, he did call the NIH to get me on list or trials...
When it was thought when I was very young ,it was a doctor in disagreement at aHawley army hospital that sent me through my parent to Walter reed ,not only had they done a brand new nerve surgery on my sister's hand enabling the continued use of her hand , they diagnosed my thought to be illness (cancer) as a phosphide disorder at Walter reed in conjuction with J Hopkins
Well then once after that a doctor wanted to do experimental sugery on one of my kidneys,Gave that an exuberant no and went on to live a fairly good life.Well 40 later I had to have a kindney removed because of a melanoma tumor. Now I am years older still , and have this to say to you, keep searching for people that know what they are doing and never stop learning all you can. Years and years more are yours and obtainable as you are doing, as it sounds like you are well aware of what you need to do.
There are many good medical techniques and people today that weren't around back then .Today's practitioners are the only reason many of us including myself are still here and living.There are many good treatments only you have to find them in part .My prayers and faith and knowing you will indeed be well again, the very best to you in your effort to recover ,a survivor of two.
Seems as though the thread is full of survivors. Becky, knowing you just a little, gives me the hope that you will take this whole ordeal with the strength, power and zeal that you do with other of your interests. You are so right in saying that you happen to live in an area of the country that has the very best health care practitioners available to you. Heck, my docs here have sent to Johns Hopkins on two different occasions when they were baffled in what to do for me next.
Yes, I agree with Chantell in that times like these, we must allow others to take part in our recovery and to do things that would make life a bit less stressful for you. It is okay to ask for what you need. Thing is, that most of us need to be told, because they didn't teach "Caring 101" in our schools and I believe I speak for most here, we would like to be of aid, but really need for you to give us ideas of ways to help.
Please know that continued prayers are being lifted. Look for ways to have some fun this weekend. Love you lady.
Seconding that "tell us what would help" request...
Lifting you up in prayer this morning, Becky, and hoping you're getting this pretty sunny weather also to lift your spirits. If possible, take some "time out" with Greg this weekend, drive out to an apple orchard, ride a roller coaster, go hit some balls at the local driving range, whatever... just get out, away from your research on the computer, and do something fun together.
Exactly Sally! Woke up today feeling 100% better than I did 24 hrs ago, rejuvenated, ready and in fighting spirit - I'm SO ready to go to serious battle, try any treatment and like I said to a friend last night - if "it's poisonous, nuclear or glowing" - bring it on!!! I found my inner giggle again, humor IS good and a great weapon when the going gets tough!
Becky, so glad to hear your inner giggle has return, keep laughing at it as your way of letting this thing know you AREN'T going down.
Thanks so much for the updates and I'm so glad you live where you do as there are many great doctors and hospitals in the area, I've been gone from Alexanderia for 27 years, still miss it, but glad to be in a lower profile area now.
Yep, can relate to the straight arrow theory or hope and the reality of it. Wonderful news about the inner giggle coming back Becky. Jill has great advice too in regards of getting out and about. It truly does help to change the routine a bit and get our blood flowing. All in all, you have loads of folks who are going to walk this walk with you, and that is will be one of the most important things going. Yes, please keep with the updates.
Bec_No_Va wrote:Thanks all! Just came back from CT, should know tomorrow exactly what it is & what I'm facing...I'm already in survivor mode...I can & will beat this!
That's the way to go girl. I spent 10 years as Exec. Dir. of the American Cancer Society and I can tell you from experience that the people who beat this darn Big C are the ones who face it with your attitude. Keep on with a positive attitude and that will cure you faster than any of the Chemo or Radiation. Of course they do help, but without the kind of heart you have they may as well forget it. I am here if you want to talk privately anytime. Do what the doctors tell you and just remember to think happy thoughts. You Will Survive I am sure and you can be sure with a group like this praying for you how can those prayers not be heard. Here is a hug from this old girl and be a good girl and do what they tell you. JB
You are in my thoughts and prayers! I know you are strong, and can get through this trial! Chin up! You have a great support system and many praying for you! Thinking of you and sending good vibes for strength, courage, and healing!
Update: and this week looks MUCH better already - I have my PET scan and new and improved oncologist apt tomorrow, Thursday Walter Reed and Hopkins is now involved as well - the NIH called me, there IS a trial Phase I going on (not a blind study) - so they will wait for the results of any tests...I'm beginning to get a phenomenal team going
Update: so, we headed to do the PET scan, tired, hungry and all of that - didn't have to drink anything, just an injection - only thing I reacted to, the scan was done in a mobile trailer - so I'm sitting there, in a fairly comfortable chair, covered in a blanket and next to me are at least 10 containers marked "caution, radioactive"...we get the CD's, head to F' fax and docs office...grab some lunch, I was freaking famished - did all the paperwork, met with assistant (who told me asshat doc was just rude!!) - finally meet new onc and by now I'm a shaky mess...we chatted, we looked at scan, we chatted and looked at scan some more - yes, I have stage 4 liver cancer, but no other lesions are showing - no, we still don't know where it is coming from - yes, it is treatable and yes, that will start sooner than later - after I see a few more specialists trying to figure out exactly where it originated...:)
All my best wishes for you both- Becky, and Greg, the other half!
Just watched Survivorman , in Norway- the spruce covered in snow, the fjords...what a beautiful country, that makes beautiful people...
Beck, This is Ric, You are often in my thoughts and more often in my prayers. If anyone has the right stuff to beat this you do. I have never met Greg, but he sounds like a rock you can depend on. Do your utmost and keep your lovely smile.Thinking of you and praying for you. Ric
((((Bec))))) I had posted on FB but wanted to send my thoughts and prayers from here too. Your "painintheassedness" is the BEST strongpoint you need right now. Push that button and ask ALL the questions you can, keep notes and notebooks.
And remember, regarding that first "now fired" doctor. No where on your body is stamped an expiration date...Can't believe he did that!!!
My aunt, not too far from you, is going through ovarian, stage 3...and is doing amazing. I will find out what hospital she was at. (Lives in Williamsburg).
If I can do anything...let me know.
Lots of love and hugs to you my friend, and Greg and the furbabies too!
Thanks again for all the wonderful support - I now have a kick-ass team in place, Walter Reed is incredible, my doc is awesome, the team is awesome and I feel like I have the best support and care I could wish for - doc even hugged me We won't know the final results and decisions until Tuesday - they did some tests, they want to review all the scans and biopsies with their own specialists - they have a team meeting on Tuesday and we see them at 2 PM & we'll get presented all the options, until then we are going to relax, enjoy the weekend knowing that we have everything in place for the fight!! :) A HUGE weight has been lifted off my/our shoulders and my blood pressure is finally back to normal! :)
Bec, that is wonderful news. Fingers, toes and everything I can crossed...prayers sent and good thought will continue through,.
Might I suggest between now and then you get a tape recorder or such...and tape the conversation between the docs and you for the appointment.
It really helps play back when you get home and can think.
Becky you are truly a remarkable woman. Keep fighting. Keep pushing the medical community. You can beat this!!!!
One day while I was at M.D.Anderson Cancer Center in Houston with my husband who was undergoing testing, I overheard a woman on the phone tearfully say to her family with great joy, "They don't know what happened! It's gone! There is nothing there!" Miracles do happen.
I am asking God and His Angel Band to support you and your husband during this difficult time and send you a miracle cure.
Thank you everyone! We're having the best weekend possible, relaxing - hanging with the critters, meeting Chantell for dinner MIL is coming week after next & she'll stay as long as needed - having her here will be awesome, both for us & her - she's a 12 year survivor of a very rare cancer & she faced it with strength, faith & hope...she's my 'mom' & we're even closer connected now than ever
Y'all are AMAZING!!!! I know Becky feels the love and support...I just want to thank each of you for the time you spend in prayer for her each and every day. Her MIL is an equally amazing woman you can easily see, when in her presence, how Bec got blessed with her guy!!!
I don't believe I've had the pleasure of meeting you before but I have added you to my prayer list and thoughts. Are you at the old Walter Reed or over at Bethesda Naval? Or did they move the old Walter Reed over to Va? We have several military personnel going to our church. Some were at the old Walter Reed, one retired but he wouldn't have the expertise you need anyhow. Have several USN friends at Bethesda Navy if you go there.
Thinking of you this morning Becky as the sun was rising and I was finishing my paper route. On Sundays I give my self oodles of permission to just enjoy the journey in the quiet peacefullness of daybreak without 'hurrying' to finish on time or before the deadline for delivery. Amazingly most Sundays I do finish on time AND, though physically tired, I am relaxed and even renewed!
This morning I found myself singing an old song called "Green Cathedrals" as the shafts of first sun broke thru the trees. So, I share it with you and pray that every day, in every place you and all who are on this giant walkabout of spirit with you are restored in the green cathedrals all around us.
The Green Cathedral
I know a green cathedral, a shadowed forest shrine, Where leaves in love join hands above and arch your prayer and mine. Within its cool depths sacred, the priestly cedar sighs, And the fir and pine lift arms divine unto the pure blue skies. In my dear green cathedral there is a sheltered seat, And choir loft in branched croft, where songs of bird hymns sweet; And I like to dream at evening, when the stars its arches light, That my Lord and God treads its hallowed sod, In the cool calm peace of night.
Becky, let us know if you need some plant sitting or garden tending in the days ahead. I'm glad your MIL will be with you soon. God speed to her.
GOD Morning!!!!!!! I'm so glad to hear that you've got such a GREAT team working with you Becky!! Dunno what's on the agenda for today, but you all stay in my prayers continuously, for strength and that peace that passes all understanding. < =D
Lifting you up in prayer this morning, Becky. Hope we'll soon have a plan for kicking this cancer to the curb!
Praying, too, for all those researchers looking for better treatments and CURES for cancer. A dear cousin and another friend of ours are battling aggressive cancers, hoping to buy a little more time until a cure is found. I don't want to switch the focus of this thread, so no comment needed, but my cousin Gary is having surgery today, so please send up an extra prayer or good thought for him. Thanks.
Alrighty Tweddly-Dee - we've already spoke this am...but a gentle reminder to the rest of the DG family Bec gets the scary unknown out of the way this afternoon when she meets with her docs for the game plan. Please keep her and Greg in your prayers...God's peace and comfort till meeting time and God's wisdom for her treating team!!
Uhm, nope - didn't get the scary unknown out of the way at all...they cannot find the primary cancer, sooooo, more tests it is...MRI, scope & Liver biopsy, if they can't find anything after all that, I'll be treated for Squamous Cell Carcinoma of unknown origin...on the flip side, there is no cancer anywhere else
Becky, continuing prayers here. Glad for the thoroughness of your teams approach. If they can't find primary than I vote it is because you have already eliminated it and are ready to do the same to any remaining lesions.
Hope your Mom in law arrives safely. That will be some good support for you and Greg as your days fill up with appointments and all. Give dear Sammie some hugs and kisses, too.
Thanks all, I am totally enjoying this beautiful day - working, but have windows open, the birds are singing & Friday nite date nite will be at Daks, sitting outside on their patio - enjoying the weather :) (bringing a coat :))
Sorry for my absence this week...been battling pneumonia here and it has been no fun at all. On the mend now thankfully and this is the first thread I wanted to check on. Yes, I hear some very positive things here and yes, you do have lots of good thoughts and prayers coming your way Becky. I love your description of yourself...painintheassedness. It will take you far though...
I love the shared story of the person on the phone call commenting that the cancer was just gone...yes, it does happen every day. The particular breast cancer I had was one in which the cancer had died upon its own and hadn't spread. I liked Cole's description of the other organ cancers already being gone, and this liver one being stubborn and needing more aggressive treatment than painintheassedness which surely had a lot to do with ridding the body of any other cancer.
You do have a great cheer leading squad here and on Facebook and who know where else Becky. Know that you are very highly regarded by many and me in particular. Have another great weekend, and yes I needed to be reminded that this isn't a picnic for Greg either, so he will be added to the prayers sent up. Feel the love baby.
Thanks Ruby :) the biopsy is scheduled for Wednesday at 9 AM, which in military terms means 11 AM - Mom is driving, I'm bringing the iPad to read and they'll knock me out for the entire procedure so it'll be nothing but a thing :-)
Hello Becky, just checking in to see how you are doing. Sounds like you are doing as well as can be expected. Will anxiously await the news from the biopsy. Keep your spirits up and stay feisty! Hope you are having a good weekend. Terri
Hey, lady! We're back home from NC, so we can zip down at need to see you.
Hoping & praying for a "simple" procedure this morning, with quick recovery and some good news answers!
(And I just have to add a thank you on behalf of my cousin's DH... had his neck pretty much flayed open last week, 21 lymph nodes removed... and not a single sign of cancer in any of them!! He's got some more scans and tests ahead, but this is incredibly good news.)
edited because vacation has thrown off my calendar completely LOL
All went well! :-) Will know results on Thursday - so now we wait! The absolute best with all of this are the docs & staff...kind, treats us with 100% dignity, smiling, funny (I got to 'drive' my bed after the procedure...ok, so I was a 'bit' drugged up) & 150% thorough - no treat & send home there :-)
Greg, Praying for strength for you. Standing strong beside YOUR LOVE may save her I 'd like to meet you someday, any man that can stand beside her must be very strong of heart. Bec is an inspiration of strength to us all. My God be with you both. Fred være med deg. Ric
Have been thinking about how hard 'waiting' is and how many times that's just the skill that's needed at the time or in the situation. I hope your waiting has been enjoyable and productive cause I know it's been active! I'm going to borrow the cautiously optimistic as just what's needed for a few of my irons in the fire.
I am optimistic for you with tomorrow's results/action plan day, because your spirit and life force is strong.
Loved being bathed in the orange light of the turning maples all around...
Today's update - they couldn't find anything in the liver from the biopsy, so they are doing another one, this time with CT guidance...they are baffled at the tumor and since the biopsy showed nothing, they are making double sure they hit the right places - I'll start chemo the week after...I have found patience I never knew I had and definitely couldn't spell :)
"baffled" is definitely better than "we're sorry to tell you that..."
Great news that the liver biopsy showed no cancer!! Of course, now there's the mystery of figuring out what was seen in the liver on the scans and why it's there, but having it not be malignant as apparently all the docs said it would be -- that's HUGE.
That's why they always say, it's not cancer for sure until the biopsy comes back to say it's cancer. It might walk like a duck, quack like a duck... and be a platypus. :-)
I just want to say, Becky, you're handling this rollercoaster with a great deal of calm, fortitude, and grace... not unexpected, but still admirable! Praying that you and Greg and your MIL find some happy distractions this weekend and get some good R&R.
Hoping for all the best to continue. .
I was really comforted by how my Mom sailed through chemo several years ago. So many advances made recently that it should just be a 'thing' and then, back to fun!! Worst part of her treatments was that the TV was always tuned to Maury Povich show!
I'm sure there's concern about just what's in your liver & why, even if it's a benign platypus, but it's very, very good news that they've found NO cancer there! And better yet, looking back, you've had biopsies at a bunch of other sites with "no cancer here!" results. SO I'm viewing the chemo as a precaution, necessary because cancer was found in ONE lymph node (now removed). I'm praying that you'll sail through your treatments, and that will be that, no more cancer, ever!
Becky, hope you are getting some outside time in the beautiful weather our area is having and you and Gregg have another date nite or two planned.
Are you still caring for feral cats at your place or have they been rehomed? My three "kittens" recognize the sound of my car as I drive down the hill and come and greet me whenever I leave or reenter the house. Curiously all three of them meow for food! Maybe it's like vocalizing for mama and I definitely am now their source of food. Glad the brothers have banded together and are sticking somewhat close.
Update!!! Doc called today since my apt on Tuesday got canceled due to the 'touch of weather' we're experiencing - they second biopsy confirmed 100% no cancer in the liver, he told me the name of what is could possibly be and it's a tumor forming live cell, totally benign - so, start chemo next week to kill the Squamous cells, it'll be a 5 month treatment, total of 6 cycles and CT follow-ups every 3 mos, since they really have nothing to compare it to. We're happy, we're elated - and my MIL wants to beat the hell out of the first doc :) Hugs to all and stay safe during the storm!!!!
Very glad to hear the good news...That makes 2 miracles in the same month.
The woman, who at my HD who just finished Chemo for her breast cancer, then had surgery
to have lymph nodes removed. has just been declared cancer free.
She will still have to do the radiation, but the worst is over.
Her name is Cara--and she is never without a smile on her face. A very "up" person.
Throughout all this, she has been out full-time Greeter at the front entrance and wears
a different hat every day.
Just yesterday, when we had the Trick or Treat function for all the little kiddies,
she was in full attire (in purple) as a Witch. Good role--as she is about 6'2" and a big girl.
Hope you stay "up" as well. seems you are doing a good job at that.
Thank you so much for sharing this wonderful news...couldn't have happened to a better person. I know that this has really been a soul searching time for you and that you have grown in your strengths and beliefs. Surviving something such as this has a way of developing our characters and are often times useful in transforming lives. I have always admired you for your grit, and know that the battle you have just won will serve to offer hope and encouragement to so many people who need those things. Yeah, the wind around us is the heavens sighing with relief. Love you muchly Becky!!! I wrote elsewhere earlier that I wanted good reports from you and have granted my wish...I couldn't be more thrilled.
The porta cath I had implanted on Friday was an interesting experience...I'm walking around with a $10K device in/on my chest :) Got my wig today, they arranged a "Look good, feel good" class for us and while I originally wanted a red curly wig, I looked like Carrot Top, so that was out! I did however get a black and silver gray bob - if you're gonna look like you're wearing a wig, why not go totally opposite - I'll more than likely be wearing hats and scarves, it's hot and itchy!! Chemo starts on Thursday, they have given me every medication and supplement available to keep me somewhat well through this, met all my chemo nurses, it's not a bad looking treatment room at all - coffee, tea, water and snacks - nice chairs, I'll bring my iPad and spend time reading and sleeping, a nutritionist will be coming by on Thurs and a therapist as well - they are even providing the legal stuff, JAG will help with living/wills, DNR's, POA - I cannot say enough good things about the treatment I have received so far at Reed, you really feel well taken care of and my team is incredible! Tomorrow I'll find out what the platypus really is...
Becky, that wig looks GREAT on you, the style is adorable!! I agree with you, why not go totally oposite and go all out? :) May I say, you look really young in that picture, more like a platinum blonde than silver/gray. (you know what they say about blondes??) ;)
The prayers, they just keep on'a comin'!!! Exodus 17:12
Good morning Becky. When I read about your expensive device I immediately pictured those victoria secret fantasy bras. Certainly sounds like you are in good hands with your Reed team. Nice to hear that treatment is so comprehensive compared to what it used to be.
Is your MIL still with you all? Hugs to Greg and Samie. I, too, like your new look .
And of course keeping up prayers for all.
Brrrr, a freeze here, but plants all put away in prep for sandy
May you shine brightly through the days ahead and be filled with the Light that overcomes all darkness.
Bec, my daughter had the port a cath, it had the longer tube (18 to 24 inches) coming off...and she would wear a camosole with the little shelf bra in it and the tubes would fold inside. Is yours like that or is it all under the skin? As much as you don't like it...trust me when I say it will save your veins in the long run and make access much less painful.
I too love the wig. Do you remember my Mom, you all did a hat & scarf party for her. She NEVER wore her wig, hated it. Would tell people, my heads perfect why put hair on it and mess with my natural beauty! She was right too! Do what is right for YOU and puts a smile on your face.
Bec, we still need to reschedule our get-together... you can borrow my blond "pixie" wig! It's fairly lightweight, but still once I started getting hot flashes I rarely wore it. I've got several cute hats to pass along also (crocheted by a DG friend).
SO encouraged by how all of this is going along... praying for that platypus to be totally harmless, too. If it's at all fast-growing, maybe the squamous cell chemo will knock it down in size.
Ok, the Platypus is (they think!) Focal nodular hyperplasia - a benign growth, normally not as many as I have, but nothing about my diagnosis has been "normal", so why should this be we'll do a CT after 2 treatments to see if there are any changes, they've taken away everything I love (when my blood levels plummet) - Sushi, rare steaks, salad bars - I told him I'd come hunt him down if chocolate doesn't taste good. We bought every antibacterial cleaner known to man...so germaphobic lifestyle for a while it's all good & I'll do just fine!
Yeah, I think I groused more about chocolate, Coke, and coffee tasting nasty than about anything else during treatment... I usually "got them back" a day or two before my next treatment, so I'd show up in the treatment room with a nutritious breakfast of a Milky Way bar and a Coke, LOL.
Caution is good, but a lot will depend on how hard your white cell count gets hit by the chemo... some people have to take extreme measures the whole time, while others are just fine going out to Walmart or whatever a couple days after treatment. Salad bars aren't just a bad idea because of the risk of germs... your digestive system can get pretty tender during treatment (lots of fast-growing cells in the lining of your gut, so it takes a hit just like hair follicles do), so you probably won't be wanting raw veggies anyway.
I hope the list of what you CAN still do during treatment will surprise you! With all the ways to help with side effects, many people pretty much sail through chemo... a few days of feeling low, and then they're off to the races again. I'm hoping that will be you!
You know what I do when I grab a shopping cart at a store that has no sanitary wipes? I pull out my little bottle of get antiseptic, splat it on my handsies, and then rub it over the clear "roller" handle that you grab. Well, my mom was a nurse on a ship in WWII...so what do you expect? Yes, you can eat off my floors. Arthritic knees be dam--d!
Dear Bec - I shall share what I've taught thing one and two...starting with the basic of making it a new habit to keep hands away from mouth - use fist or ideally elbow to push open doors...heck a foot will do. Our cell phones and bottom of our purses carry all kinds of cooties - wipe em down. Public toilets? Flush with your back to them - ok...takes practice but worth it...those flushes spew 'stuff' quite far. At home? Lid down - then flush...your toothbrush will thank you. And no more drinking oughta Sammie's bowl...got it?
Chantell, that last one is going to be hard...she and Sammie share a night cap quite often! Ease up on the puppy and kitty kisses also. Don't need to avoid kitties...but watch for scratches, avoid...and use neosporin if one does happen asap.
Sadly, alcohol thins the blood...something you don't want now...so that is another no-no.
AND be careful about any supplements you take with folic acid. Ask the doctor before continuing them as they can mess with chemo.
LOL Debbie!!! Y'all please keep our Becky in thought and prayer tomorrow as she starts her chemo!! And if you're not prayed out...my sister (3 1/2 years my junior) is having to have surgery next Wed...would you hold her up in prayer as well? As always...thanks to each of you!!!
I'm getting my first batch of chemo right now & considering the amount of poison being injected, I'm feeling nothing...of course it's early yet, but now that it's being injected I'm over the tiny bit of nerves I had - Tiz'nutin but a thing
Giggle, I knew I felt something hot breathing down my neck :) Chemo wasn't half bad, considering & even if I know it was the first treatment I feel just fine...I'm sure it'll deteriorate as we go along, but I'm the forever optimist :)
Bec, Prayers that you are weathering well. I remember a young fella that would provide his beloved mom a little "tokin" as a show of his support after she'd had her chemo. It did help her, but that was the 70's and chemo was more of a shotgun treatment than science. :>} Ric
Had to read the "tokin" a few times before knowing what you were speaking of Ric. Have heard that a lot of folks use tokin as a way of alleviating some of the side effects. I have a doctor who mentions it every time I visit him as a possibility for my ails. I always say thank you, I have had enough. I am of the belief, that a person has to do, what a person has to do. Pain is essential, suffering optional.
Sally, the mass in Becky's liver turned out to be a "platypus," but she's still doing a chemo series because of the squamous cell cancer that was found in the swollen lymph node (now removed) that started off this whole diagnostic effort. The great thing is that now she's doing a "just in case" chemo series, rather than a "no-holds-barred" maximum dose chemo series (which is what she thought she'd be looking at if the big thing in her liver had also turned out to be squamous cell cancer).
So having the platypus in the picture sort of turned the diagnosis from Cancer with a big "C" to little "c" cancer. :-)
But I agree... 240 responses on this thread, and chemo underway... time for a new thread as we hold Becky close in our thoughts and lift her up with our prayers!
I'll be back with a link to a continuation thread...